Primary sclerosing cholangitis care at Mayo Clinic
Your Mayo Clinic care team. Effective treatment of primary sclerosing cholangitis requires coordinated care by several specialties. Specialists in gastroenterology and hepatology, pathologists, oncologists, pediatric specialists, endoscopy specialists and surgeons work as a team to provide comprehensive care for adults and children with primary sclerosing cholangitis.
If a transplant is necessary, these specialists also work with transplant surgeons and other experts to provide a seamless patient experience in the Mayo Clinic Transplant Center. The Hepatobiliary Clinic coordinates medical care with research.
- Experience. Mayo Clinic is a leading treatment center for people with primary sclerosing cholangitis. Each year since 2010, Mayo Clinic specialists have cared for more than 1,600 patients with cholangitis, many of whom had primary sclerosing cholangitis or associated complications.
- Pediatric expertise. Specialists in the Pediatric Liver Clinic at Mayo Clinic's campus in Minnesota are experienced in accurately diagnosing children who have liver diseases.
- An efficient system. A detailed itinerary for appointments, tests and procedures lets you make the most of your time at the clinic. Mayo staff runs all tests and labs at Mayo Clinic, which means tests taken in the morning can be reviewed the same afternoon. This collaborative approach means doctors can often evaluate you and develop a treatment plan within two or three days.
- Individualized care. Your Mayo Clinic team will tailor a treatment plan to fit your or your child's needs. Your Mayo Clinic treatment team will educate you and your family about primary sclerosing cholangitis. Your doctors will also work closely with your primary doctor in providing your follow-up care.
The Mayo Clinic experience and patient stories
Our patients tell us that the quality of their interactions, our attention to detail and the efficiency of their visits mean health care like they've never experienced. See the stories of satisfied Mayo Clinic patients.
Rabbi Returns to His Life's Mission After Bile Duct Treatment
When debilitating itching and fatigue prevented him from working, Rabbi Melvin Gruber turned to Mayo Clinic, where a series of specialized procedures allowed him to get back to teaching and sharing his knowledge with his community. Rabbi Melvin Gruber has dedicated his life to studying and teaching the Talmud, a written compilation of Jewish oral [...]
Friend's Generosity and Successful Transplant Give Maikki Nekton a New Way of Looking at the World
Maikki Nekton was 32 years old when she had a life-saving liver transplant, thanks to her good friend, Jenifer DeMattia, who donated a portion of her own liver to Maikki. Prior to the transplant, Maikki worked as a clinical social worker in the Maryland school system and for nonprofit organizations. Jenifer was her co-worker, and [...]
Liver Transplant Allows Young Father to Be There for His Family
Bryan Duncan didn?t think twice about the lab tests he had as part of a routine medical checkup in the fall of 2014. A 29-year-old father of two small children, Bryan led a busy life, didn?t have any health problems, and felt fine. When the test results came back, though, they showed enzyme levels in [...]
Expertise and rankings
- Nationally recognized expertise. Liver specialists at Mayo Clinic have developed several mathematical models that assess the severity of certain liver diseases. These models help doctors determine where a person ranks on the priority list for a transplant.
- Pioneers in research. Many Mayo Clinic doctors are involved in clinical trials of new medications for primary sclerosing cholangitis. Researchers at Mayo Clinic are also studying the DNA of people with primary sclerosing cholangitis in hopes of identifying genes that increase the risk of the disease and predict its course.
- Liver transplant. Mayo Clinic transplant specialists have performed many transplants in people who have primary sclerosing cholangitis. People with primary sclerosing cholangitis who have liver transplants generally have high survival rates — 80 to 85 percent after five years on average. Recipients of liver transplants at Mayo Clinic have above-average survival rates.
Mayo Clinic is also one of the few medical centers in the country to offer liver transplants as a treatment option for bile duct cancer, which develops at much higher rates among people with primary sclerosing cholangitis than in the general population.
Mayo Clinic in Rochester, Minn., ranks No. 1 for digestive disorders in the U.S. News & World Report Best Hospitals rankings. Mayo Clinic in Scottsdale, Ariz., and Mayo Clinic in Jacksonville, Fla., are ranked among the Best Hospitals for digestive disorders by U.S. News & World Report.
Learn more about the Liver Transplant Program's expertise and rankings.
Locations, travel and lodging
Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.
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Costs and insurance
Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.
In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.
Learn more about appointments at Mayo Clinic.
Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.