Neurofibromatosis care at Mayo Clinic

Your Mayo Clinic care team

Mayo Clinic's world-renowned Neurofibromatosis Clinic provides coordinated care for people with this complex condition. Geneticists, adult and pediatric neurologists, neuro-oncologists, radiologists, and neurosurgeons work together to provide exactly the care you need. Genetic counselors, ophthalmologists, orthopedic surgeons, dermatologists, pain medicine experts, and ear, nose and throat specialists also are part of the treatment team.

Mayo Clinic in Rochester, Minnesota, also offers the family-friendly Children's Center for children with neurofibromatosis.

Having all of this subspecialized expertise in a single place, focused on you, means that you're not just getting one opinion — care is discussed among the team, appointments are scheduled in coordination, and highly specialized neurofibromatosis experts are all working together to determine what's best for you.

What might take months to accomplish elsewhere can typically be done in a matter of only days at Mayo Clinic.

Advanced diagnosis and treatment

Mayo Clinic patients have access to the latest imaging and diagnostic tools available, and there's a long history of Mayo Clinic scientists developing cutting-edge technologies for patient care. Mayo Clinic specialists use the full array of genetic, imaging, vision and hearing tests to diagnose neurofibromatosis.

Mayo Clinic specialists also have experience with treatment for severe neurofibromatosis, including surgery, stereotactic radiosurgery, cochlear implants and auditory brainstem implant.

The Neurofibromatosis Clinic also has genetic counselors who can help you make decisions that are appropriate for you and your family in view of risk, family goals, and ethical and religious standards.

The Mayo Clinic experience and patient stories

Our patients tell us that the quality of their interactions, our attention to detail and the efficiency of their visits mean health care like they've never experienced. See the stories of satisfied Mayo Clinic patients.

  1. Surgery to Remove a Nerve Tumor Restores Rose's Joy

    Eleven years of constant pain had left Rose Boehmer worn down and discouraged. Then she met Robert Spinner, M.D., a neurosurgeon at Mayo Clinic, who not only identified the long-hidden source of her pain, he and his surgical team eliminated it -- returning Rose to a full and happy life. Rose Boehmer had endured chronic [...]

Expertise and rankings

Mayo Clinic's neurofibromatosis experts see over 400 patients with neurofibromatosis each year.

Learn more about Mayo Clinic's neurology and neurosurgery departments' expertise and rankings.

Mayo Clinic in Rochester, Minn., and Mayo Clinic in Jacksonville, Fla., rank among the Best Hospitals for neurology and neurosurgery in the U.S. News & World Report Best Hospitals rankings. Mayo Clinic in Phoenix/Scottsdale, Ariz., is ranked high-performing for neurology and neurosurgery by U.S. News & World Report. Mayo Clinic Children's Center has again been ranked as one of the top performing children's hospital in Minnesota, the Dakotas and Iowa on U.S. News & World Report's 2019–2020 Best Children's Hospitals rankings.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

More information about billing and insurance:

Mayo Clinic in Arizona, Florida and Minnesota

Mayo Clinic Health System

Dec. 04, 2018