Neurofibromatosis care at Mayo Clinic

Your Mayo Clinic care team

Mayo Clinic's world-renowned Neurofibromatosis Clinic provides coordinated care for people with this complex condition. Geneticists, adult and pediatric neurologists, neuro-oncologists, radiologists, and neurosurgeons work together to provide exactly the care you need. Genetic counselors, ophthalmologists, orthopedic surgeons, dermatologists, pain medicine experts, and ear, nose and throat specialists also are part of the treatment team.

Mayo Clinic in Rochester, Minnesota, also offers the family-friendly Children's Center for children with neurofibromatosis.

Having all of this subspecialized expertise in a single place, focused on you, means that you're not just getting one opinion — care is discussed among the team, appointments are scheduled in coordination, and highly specialized neurofibromatosis experts are all working together to determine what's best for you.

What might take months to accomplish elsewhere can typically be done in a matter of only days at Mayo Clinic.

Advanced diagnosis and treatment

Mayo Clinic doctors have access to the latest imaging and diagnostic tools available, and there's a long history of Mayo Clinic scientists developing cutting-edge technologies for patient care. Mayo Clinic specialists use the full array of genetic, imaging, vision and hearing tests to diagnose neurofibromatosis.

Mayo Clinic specialists also have experience with treatment for severe neurofibromatosis, including surgery, stereotactic radiosurgery, cochlear implants and auditory brainstem implant.

The Neurofibromatosis Clinic also has genetic counselors who can help you make decisions that are appropriate for you and your family in view of risk, family goals, and ethical and religious standards.

Expertise and rankings

Mayo Clinic's neurofibromatosis experts see nearly 500 people who have neurofibromatosis each year.

Learn more about Mayo Clinic's neurology and neurosurgery departments' expertise and rankings.

Mayo Clinic in Rochester, Minnesota, Mayo Clinic in Phoenix/Scottsdale, Arizona, and Mayo Clinic in Jacksonville, Florida, are ranked among the Best Hospitals for neurology and neurosurgery in the U.S. News & World Report Best Hospitals rankings.

Mayo Clinic Children's Center

Highly skilled pediatric experts diagnose and treat all types of conditions in children. As a team, we work together to find answers, set goals and develop a treatment plan tailored to your child's needs.

Learn more about the Children's Center.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

More information about billing and insurance:

Mayo Clinic in Arizona, Florida and Minnesota

Mayo Clinic Health System

Jan. 21, 2021