Schwannomatosis care at Mayo Clinic
NF2-related schwannomatosis (NF2) can affect hearing, balance, vision, and nerve function, so care often involves many specialties. Mayo Clinic provides coordinated, comprehensive care through a dedicated program focused on NF2.
Your Mayo Clinic care team
At Mayo Clinic, people with NF2-related schwannomatosis receive care through the Neurofibromatosis Clinic. This world-recognized program brings together experts from many specialties who focus on NF2 diagnosis, treatment and long-term management.
Your care team may include geneticists, neurologists, neuro-oncologists, radiologists and neurosurgeons. You also may see genetic counselors, orthopedic surgeons, ophthalmologists, pain medicine experts, and ear, nose and throat specialists.
Having all of these subspecialists in one place means your care is coordinated and focused on you. Team members meet to review your test results, discuss treatment options, and plan your next steps together. Appointments are often scheduled over just a few days so you can receive complete care quickly and efficiently.
Why choose Mayo Clinic for NF2 care
- Experience. Mayo experts care for one of the largest groups of people with NF2 in the United States.
- Advanced testing. Mayo Clinic offers high-resolution brain MRI, genetic testing and advanced hearing evaluations to guide treatment.
- Team approach. Specialists share results and develop a personalized care plan for you.
- Innovative treatments. Options include hearing preservation surgery, bevacizumab therapy, and access to clinical trials for NF2.
- Comprehensive support. Counseling, pain management and rehabilitation services help you live well with NF2.
At Mayo Clinic, you can expect expert answers, coordinated care and the most advanced options available for NF2-related schwannomatosis.
Advanced diagnosis and treatment
At Mayo Clinic, people with NF2-related schwannomatosis (NF2) benefit from the most advanced tools for diagnosis and treatment. Mayo specialists use the latest genetic, imaging, hearing and vision tests to find tumors early and guide your care.
Mayo Clinic experts use high-resolution brain MRI and spine MRI to locate tumors such as vestibular schwannomas, meningiomas and ependymomas. They also perform detailed hearing and balance testing to help detect changes that may suggest nerve involvement.
Treatment for NF2-related schwannomatosis may include:
- Surgery to remove or reduce tumors while protecting nerve function.
- Stereotactic radiosurgery small tumors or those in hard-to-reach areas.
- Cochlear implants or auditory brainstem implants to improve hearing when tumors affect the hearing nerves.
- Targeted therapy, such as bevacizumab, to help slow tumor growth and preserve hearing.
The Neurofibromatosis Clinic includes genetic counselors who help you and your family understand genetic testing, inheritance patterns and treatment choices. Counselors also support family planning and help you make decisions that match your personal needs and values.
At Mayo Clinic, you'll find comprehensive, team-based care — from early diagnosis to lifelong management of NF2-related schwannomatosis.
Expertise and rankings
People with NF2-related schwannomatosis come to Mayo Clinic from across the U.S. and around the world for coordinated, expert care.
Learn more about Mayo Clinic's neurology and neurosurgery departments' expertise and rankings.
Mayo Clinic in Rochester, Minnesota, Mayo Clinic in Jacksonville, Florida, and Mayo Clinic in Phoenix/Scottsdale, Arizona., rank among the Best Hospitals for neurology and neurosurgery and for cancer in the U.S. News & World Report rankings. Mayo Clinic Children's in Rochester is ranked the No. 1 hospital in Minnesota and the five-state region of Iowa, Minnesota, North Dakota, South Dakota and Wisconsin, according to U.S. News & World Report's 2025–2026 "Best Children's Hospitals" rankings. With the emphasis on collaborative care, specialists interact very closely with their colleagues across all sites.
Locations, travel and lodging
Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.
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Costs and insurance
Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.
In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.
Learn more about appointments at Mayo Clinic.
Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.
Jan. 30, 2026