Hemangioblastoma care at Mayo Clinic
Your Mayo Clinic care team
Mayo Clinic's world-renowned experts provide coordinated, compassionate care for people with hemangioblastoma. Geneticists, neurologists, neuro-oncologists, radiologists and neurosurgeons work together to provide exactly the care you need. Genetic counselors, ophthalmologists and pain medicine specialists also are part of the team.
Having all of this subspecialized expertise in one place, focused on you, means you're not just getting one opinion. Your care is discussed among the team, appointments are coordinated and highly specialized experts collaborate to determine what's best for you.
What might take months to accomplish elsewhere can often be completed in just days at Mayo Clinic.
Advanced diagnosis and treatment
Mayo Clinic specialists use the most advanced imaging and diagnostic tools available. There's a long tradition of Mayo scientists developing cutting-edge technologies that improve patient care. Specialists use the full range of genetic, imaging and vision tests to diagnose hemangioblastoma.
Experts in neurosurgery and radiation oncology have extensive experience treating hemangioblastoma using techniques such as microsurgery and stereotactic radiosurgery.
Mayo Clinic is among the highest-volume neurosurgical centers in the United States. It's not unusual for surgeons from several specialties to operate together to achieve the best possible outcome.
Research and innovation
Mayo Clinic researchers study new approaches to diagnosing and treating hemangioblastoma and von Hippel-Lindau (VHL) disease. Current work includes refining surgical and radiosurgical techniques, improving imaging for early detection, and advancing targeted therapies such as belzutifan. Mayo's ongoing clinical trials and laboratory research help bring the latest scientific discoveries directly to patient care.
Comprehensive care for von Hippel-Lindau disease
The Von Hippel-Lindau Clinic within Mayo Clinic's Department of Clinical Genomics brings together experts in medical genetics, ophthalmology, urology and other fields. Depending on your needs, you also may have specialists in nephrology, endocrinology and neurology on your care team.
Genetic counselors in the VHL Clinic help you and your family make informed decisions about care. They can assist with understanding risks, discussing family goals, and considering ethical or religious factors when making treatment choices.
Why choose Mayo Clinic for hemangioblastoma care
Mayo Clinic brings together deep experience, advanced technology and a team-based approach to provide safe, effective care. You get one coordinated plan, timely access to imaging and treatment, and support for long-term needs, including genetic counseling for VHL disease. Care is available at multiple Mayo Clinic locations, and the team can help with travel planning and insurance questions so you can focus on getting well.
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