You'll probably first bring your symptoms to the attention of your family doctor, who may refer you to a rheumatologist — a doctor who specializes in the treatment of arthritis and other diseases of the joints, muscles and bone.
What you can do
When you go in to see your doctor, be sure to have a record of your symptoms. Although it may be difficult to pinpoint when symptoms started, try to estimate when your symptoms first started and which parts of your body are affected. You may want to write a list that includes:
- Detailed descriptions of your symptoms
- Information about medical problems you've had
- Information about the medical problems of your parents or siblings
- All the medications and dietary supplements you take
- Questions you want to ask the doctor
Prepare a list of questions ahead of time to help make the most of your limited time with your doctor. For dermatomyositis, some basic questions to ask your doctor include:
- What is likely causing my symptoms?
- Are there other possible causes for my symptoms?
- Are my symptoms likely to change over time?
- What kind of tests might I need? Are any special preparations required?
- Are treatments available for my condition? What treatments do you recommend?
- I have other medical conditions. How can I best manage them together?
- Do you have any brochures or other printed material that I can take with me? What websites do you recommend?
In addition to the questions that you've prepared in advance, don't hesitate to ask your doctor questions during your appointment if you think of something new.
What to expect from your doctor
Your doctor will likely ask you several questions, such as:
Jul. 07, 2011
- When did you first notice your symptoms?
- Did your condition developing gradually or did it come on suddenly?
- Are you easily fatigued during waking hours?
- What other symptoms are you experiencing?
- Does your condition limit your activities?
- Has anyone in your family ever been diagnosed with a disease or condition that affects the muscles?
- Are you currently taking any medications or dietary supplements?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- NINDS dermatomyositis information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/dermatomyositis/dermatomyositis.htm. Accessed June 13, 2011.
- Dalakas MC. Inflammatory disorders of muscle: Progress in polymyositis, dermatomyositis and inclusion body myositis. Current Opinion in Neurology. 2004;17:561.
- Miller ML. Clinical manifestations and diagnosis of adult dermatomyositis and polymyositis. http://www.uptodate.com/home/index.html. Accessed June 1, 2011.
- Greenberg SA, et al. Uncertainties in the pathogenesis of adult dermatomyositis. Current Opinion in Neurology. 2004;17:359.
- Santmyire-Rosenberger B, et al. Skin involvement in dermatomyositis. Current Opinion in Rheumatology. 2003;15:714.
- Baer AN, et al. Polymyositis & dermatomyositis. In: Imboden JB, et al. Current Rheumatology Diagnosis & Treatment. 2nd ed. New York, N.Y.: The McGraw-Hill Companies; 2007. http://www.accessmedicine.com/content.aspx?aid=2726184. Accessed June 6, 2011.
- Cordeiro AC, et al. Treatment of inflammatory myopathies. Postgraduate Medical Journal. 2006;82:417.
- Walker UA. Imaging tools for the clinical assessment of idiopathic inflammatory myositis. Current Opinion in Rheumatology. 2008;20:656.
- Miller ML, et al. Initial treatment of dermatomyositis and polymyositis in adults. http://www.uptodate.com/home/index.html. Accessed June 1, 2011.
- Miller ML, et al. Treatment of recurrent and resistant dermatomyositis and polymyositis in adults. http://www.uptodate.com/home/index.html. Accessed June 1, 2011.
- Dimachkie MM. Idiopathic inflammatory myopathies. Journal of Neuroimmunology. 2011;231:32.
- Koski CL, et al. Intravenous immunoglobulin use for neurologic diseases. Journal of Infusion Nursing. 2006;29:S21.
- Medications. The Myositis Association. http://www.myositis.org/template/page.cfm?id=304. Accessed June 9, 2011.