Metachromatic leukodystrophy

Metachromatic leukodystrophy care at Mayo Clinic

Your Mayo Clinic care team

At Mayo Clinic, doctors work together as a team to care for people with metachromatic leukodystrophy. The team includes doctors trained in nervous system conditions called neurologists, doctors trained in genetic conditions called medical geneticists, and doctors trained in other specialties.

Mayo Clinic builds a team of specialists who take the time to listen and fully understand your personal health concerns. We design your care plan to meet your unique healthcare needs. Our specialists provide you with the highest quality care, safety and service.

As part of Mayo Clinic Children's, highly skilled experts assess, diagnose and treat children. This comprehensive healthcare team delivers personalized, effective treatment in a family-friendly environment.

Mayo Clinic staff offers a wide variety of various resources, education and information for your family. You and your family also may work with a genetic counselor.

Advanced diagnosis and treatment

Mayo Clinic's healthcare team works with you to create the right treatment program to meet your needs and preferences. You'll receive state-of-the-art care and have access to the latest treatments for metachromatic leukodystrophy.

Follow-up care

Mayo Clinic healthcare professionals can coordinate your follow-up care with your primary care professional. You or your child can be monitored for changes in movement, swallowing, communication, behavior and other functions. Your healthcare team can provide comprehensive care and treat any other medical conditions.

Expertise and rankings

Mayo Clinic neurologists and other specialists are experienced in caring for children and adults with metachromatic leukodystrophy. Mayo is dedicated to finding solutions to improve care and quality of life.

Mayo Clinic in Rochester, Minnesota, Mayo Clinic in Phoenix/Scottsdale, Arizona, and Mayo Clinic in Jacksonville, Florida, rank among the Best Hospitals for neurology and neurosurgery in the U.S. News & World Report Best Hospitals rankings. In U.S. News & World Report’s regional analysis, Mayo Clinic Children’s is ranked No. 1 in Minnesota and No. 1 in the five-state Upper Midwest region, which includes Minnesota, Wisconsin, Iowa, North Dakota and South Dakota.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.