Adrenoleukodystrophy care at Mayo Clinic

Your Mayo Clinic care team

Mayo Clinic doctors trained in neurology, pediatric neurology, endocrinology, gastroenterology, physical medicine and rehabilitation, and others evaluate and treat adults and children who have adrenoleukodystrophy at Mayo Clinic.

Advanced treatment

Mayo Clinic doctors have expertise in providing comprehensive care for children and adults who have adrenoleukodystrophy. The Mayo Clinic Peroxisomal Disorders Program at Mayo Clinic in Rochester, Minnesota, provides integrated care, including stem cell transplantation, for adults and children who have all forms of ALD.

Pediatric expertise

Doctors trained in pediatric neurology, neurology, endocrinology, gastroenterology, pediatric and adolescent medicine, physical medicine and rehabilitation, and others evaluate and treat children who have adrenoleukodystrophy at Mayo Clinic in Rochester, Minnesota.

Genetic testing

Mayo Clinic doctors conduct genetic testing and research for people who have adrenoleukodystrophy and their families. Doctors trained in hereditary conditions (neurometabolic specialists) can explain your diagnosis and the role of genes in your condition.

Nationally recognized expertise

Mayo Clinic in Rochester, Minn., ranks No. 1 for neurology and neurosurgery in the U.S. News & World Report Best Hospitals rankings. Mayo Clinic in Phoenix/Scottsdale, Ariz., and Mayo Clinic in Jacksonville, Fla., are ranked among the Best Hospitals for neurology and neurosurgery by U.S. News & World Report. Mayo Clinic also ranks among the Best Children's Hospitals for neurology and neurosurgery.

Expertise and rankings

Experience

Mayo Clinic doctors have experience in diagnosing and treating adults and children with adrenoleukodystrophy (ALD), which may be difficult to diagnose because the symptoms are similar to other neurological conditions. Each year, Mayo Clinic evaluates and treats nearly 40 people with this rare condition.

Research leader

Researchers in the Biochemical Genetics Laboratory at Mayo Clinic in Rochester, Minnesota, study new tests for adrenoleukodystrophy. Mayo Clinic's Biochemical Genetics Laboratory is one of the few facilities in the United States that performs blood tests to confirm the diagnosis of adrenoleukodystrophy and other metabolic disorders.

Nationally recognized expertise

Mayo Clinic in Rochester, Minn., ranks No. 1 for neurology and neurosurgery in the U.S. News & World Report Best Hospitals rankings. Mayo Clinic in Phoenix/Scottsdale, Ariz., and Mayo Clinic in Jacksonville, Fla., are ranked among the Best Hospitals for neurology and neurosurgery by U.S. News & World Report. Mayo Clinic also ranks among the Best Children's Hospitals for neurology and neurosurgery.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

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Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

Aug. 08, 2018