Hereditary hemorrhagic telangiectasia

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Displaying 21-27 out of 27 doctors available

  1. Pavel N. Pichurin, M.D.

    Pavel N. Pichurin, M.D.

    1. Medical Geneticist
    1. Rochester, MN
    Areas of focus:

    Skin biopsy, Genetic disorder, Hereditary hemorrhagic telangiectasia, Von Hippel-Lindau syndrome, Metabolic disorders

  2. Rajiv K. K. Pruthi, M.B.B.S.

    Rajiv K. K. Pruthi, M.B.B.S.

    1. Hematologist
    1. Rochester, MN
    Areas of focus:

    Bleeding disorder, Hemophilia, von Willebrand disease, Hereditary hemorrhagic telangiectasia, Thrombophilia

  3. Kristen J. Ramones, M.D.

    Kristen J. Ramones, M.D.

    1. Pediatric Pulmonologist
    1. Rochester, MN
    Areas of focus:

    Bronchoscopy, Asthma, Cystic fibrosis, Pulmonary hypertension, Hereditary hemorrhagic telangiectasia, Bronchopulmonary ...dysplasia

  4. Janalee K. Stokken, M.D.

    Janalee K. Stokken, M.D.

    1. Otolaryngologist
    1. Rochester, MN
    Areas of focus:

    Orbital decompression surgery, Pituitary tumor surgery, Endoscopic sinus surgery, Sinus surgery, Septoplasty, Skull bas...e surgery, Dacryocystorhinostomy, Orbital tumor removal, Pituitary tumor, Chronic sinusitis, Thyroid eye disease, Nasal polyps, CSF leak, Graves' disease, Hereditary hemorrhagic telangiectasia, Nasal and paranasal tumors, Nasal cancer

  5. Karen L. Swanson, D.O.

    Karen L. Swanson, D.O.

    1. Internist
    2. Pulmonologist
    3. Critical Care Specialist
    1. Phoenix, AZ
    Areas of focus:

    Lung volume reduction surgery, Rigid bronchoscopy, Lung cancer, Pulmonary hypertension, Hereditary hemorrhagic telangie...ctasia

  6. Lindsy N. Williams, M.D.

    Lindsy N. Williams, M.D.

    1. Neurologist
    1. Jacksonville, FL
    Areas of focus:

    Telestroke, Transient ischemic attack, Stroke, Subdural hematoma, Carotid artery disease, Moyamoya disease, Cerebral am...yloid angiopathy, Subarachnoid hemorrhage, Intracerebral hemorrhage, Brain aneurysm, Antiphospholipid syndrome, Giant cell arteritis, Cavernous malformations, Brain AVM, Vascular dementia, Hereditary hemorrhagic telangiectasia, Arteriovenous malformation, Venous malformation, Cerebrovascular disease, Central nervous system vascular malformations, Spinal arteriovenous malformation, Dural arteriovenous fistula, Intracranial venous malformation, Intracranial hematoma, Intracranial hemorrhage, Subdural hemorrhage, Venous thrombosis, Amaurosis fugax, Takayasu's arteritis, Brain hemorrhage, Carotid bruit, Vertebrobasilar insufficiency, Vertebral artery stenosis, Vertebral artery dissection, Vertebral artery blockage, Basilar dissection, Basilar artery stenosis, Venous angioma, Arteritis, Central nervous system arteritis, Binswanger's disease, Small vessel white matter disease, Cerebral microbleeds, CADASIL, Cavernous hemangioma, Carotid dissection

  7. Christopher P. Wood, M.D.

    Christopher P. Wood, M.D.

    1. Radiologist
    1. Rochester, MN
    Areas of focus:

    Hereditary hemorrhagic telangiectasia

Research

Mayo Clinic researchers are studying how HHT affects the nose, brain, lungs, digestive tract and liver. They're also assessing the role of anti-angiogenic medicines. These medicines keep blood vessels from forming and manage serious HHT-related bleeding. They include bevacizumab (Avastin), given through a vein. They also include medicines taken by mouth such as pazopanib (Votrient), pomalidomide (Pomalyst) and tacrolimus (Prograf, Protopic, others).

Mayo Clinic has been recruiting people for the Brain Vascular Malformations Consortium (BVMC) study. Mayo Clinic also is recruiting for a biorepository of patient blood samples that can help researchers find better diagnostic, prognostic and treatment options for this rare disease.

Publications

See a list of publications about hereditary hemorrhagic telangiectasia by Mayo Clinic doctors on PubMed, a service of the National Library of Medicine.

Research Profiles

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By Mayo Clinic Staff

Hereditary hemorrhagic telangiectasia care at Mayo Clinic

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Diagnosis & treatmentCare at Mayo Clinic
Feb. 07, 2025
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Hereditary hemorrhagic telangiectasia

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