Preparing for your appointment

Most people with Paget's disease of bone don't have any symptoms and are diagnosed when an X-ray or blood test taken for another reason reveals signs of Paget's disease of bone. In some cases, you may be referred to a doctor who specializes in metabolic and hormonal disorders (endocrinologist) or in joint and muscle disorders (rheumatologist).

Here's some information to help you get ready for your appointment.

What you can do

When you make the appointment, ask if there's anything you need to do in advance, such as fasting before having a specific test. Make a list of:

  • Your symptoms, including any that seem unrelated to the reason for your appointment
  • Key personal information, including major stresses, recent life changes and family medical history
  • All medications, vitamins or other supplements you take, including the doses
  • Questions to ask your doctor

Take a family member or friend along, if possible, to help you remember the information you're given.

For Paget's disease of bone, some basic questions to ask your doctor include:

  • What's likely causing my symptoms?
  • What are other possible causes for my symptoms?
  • What tests do I need?
  • Is my condition likely temporary or chronic?
  • What's the best course of action?
  • What are the alternatives to the primary approach you're suggesting?
  • How can I best manage this condition with my other health conditions?
  • Are there restrictions I need to follow?
  • Should I see a specialist?
  • Are there brochures or other printed material I can have? What websites do you recommend?

Don't hesitate to ask other questions.

What to expect from your doctor

Your doctor is likely to ask you some of the following questions:

  • Have you had numbness or tingling?
  • How about muscle weakness?
  • Any new headaches?
  • Has your hearing recently worsened?
Aug. 09, 2017
  1. Seton M. Clinical manifestations and diagnosis of Paget disease of bone. Accessed Nov. 11, 2015.
  2. Singer FR, et al. Paget's disease of the bone: An Endocrine Society clinical practice guideline. Journal of Clinical Endocrinology and Metabolism. 2014;99:1.
  3. What is Paget's disease of bone? National Institutes of Health Osteoporosis and Related Bone Diseases: National Resource Center. Accessed Nov. 11, 2015.
  4. Seton M. Treatment of Paget disease of bone. Accessed Nov. 11, 2015.