马凡综合征和胸主动脉诊所 概述

The Marfan Syndrome and Thoracic Aorta Clinic provides comprehensive, specialized care for people with suspected or known heritable aortic disorders, including Marfan syndrome, Loeys-Dietz syndrome, vascular Ehlers-Danlos syndrome and other connective tissue disorders, bicuspid aortopathy, familial thoracic aortic aneurysm, and dissection syndromes.

New medical and surgical treatments are being developed for Marfan syndrome and related disorders. Advances in medical and surgical care have greatly improved life expectancy for people with these conditions. Proper treatment requires accurate genetic evaluation as medical and surgical decision-making is increasingly driven by genetic diagnosis.

In the Marfan Syndrome and Thoracic Aorta Clinic, a multidisciplinary team of doctors trained in heart conditions (cardiologists), heart and blood vessel surgery (cardiovascular surgeons), cardiac imaging, hereditary conditions (medical geneticists), eye conditions (ophthalmologists), bone and muscle surgery (orthopedic surgeons), and other areas collaborate to provide your care.

Doctors trained in treating children with medical conditions (pediatricians) and heart conditions (pediatric cardiologists) provide care for children with Marfan syndrome and related disorders at Mayo Clinic's campus in Minnesota.

You'll work closely with a team of specialists to create a treatment plan that meets your individual needs. Your treatment may include medications, genetic and reproductive counseling, lifestyle changes, and possibly surgery.

Services

Conditions diagnosed and treated at the Marfan Syndrome and Thoracic Aorta Clinic include:

Your comprehensive care plan may involve the following services:

  • Noninvasive cardiovascular imaging
  • Advanced cardiovascular biomarker testing
  • Genetic testing and counseling
  • Risk stratification
  • Advanced cardiovascular lab testing
  • Medical treatments
  • Cardiac surgery

Depending on your situation, your treatment may also involve care for musculoskeletal system problems, vision problems and chronic pain.

Research

Mayo Clinic researchers are working to improve diagnostic tests, genetic testing and treatment of Marfan syndrome. Doctors also research new surgical techniques and the outcomes of surgical treatments for Marfan syndrome.

预约

您的主治医生可能会对您进行转诊,您也可以在没有转诊的情况下预约。不是所有地点都能提供全部服务。请在预约时进行确认。

如需预约Mayo Clinic亚利桑那州院区的马凡综合征和胸主动脉诊所或了解更多信息,请于周一至周五的上午8点至下午5点(美国山区时间)致电800-446-2279(免费),联系中央预约办公室,或是填写在线预约申请表。

如需预约Mayo Clinic佛罗里达州院区的马凡综合征和胸主动脉诊所或了解更多信息,请于周一至周五的上午8点至下午5点(美国东部时间)致电904-953-6351或中央预约办公室(电话:904-953-0853),或是填写在线预约申请表。

如需预约Mayo Clinic明尼苏达州院区的马凡综合征和胸主动脉诊所或了解更多信息,请于周一至周五的上午8点至下午5点(美国中部时间)致电507-284-3994,联系心血管内科,或是填写在线预约申请表。