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Genetic testing looks for gene changes known to cause BBS. Sometimes the genetic test doesn't show a difference in genes, so the diagnosis is based on symptoms.
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Centralized follow-up will be conducted by having sites upload patient data following each visit via the web-based data system, with patients who do not ...
Clinical Trials · Group Curriculum for Improving Survivorship Outcomes in Adolescent and Young Adult Cancer Survivors · A Study to Establish a Registry for ...
Selumetinib is a drug that works by blocking some enzymes that low grade glioma tumor cells need for their growth. This results in killing tumor cells. Drugs ...
The purpose of this study is to assess the differences in microvascular anastomosis outcomes between the experiment aneurysmal subarachnoid hemorrhage (aSAH)- ...
The purpose of this study is to better understand the anatomy of the lymphatic structure and the molecular process that leads to the over production of ...
A "Registry" is a list of basic information about people who have a certain disease or condition in common. These immune deficiency diseases are thought to be ...
This resource-platform will be named Project BTTRFLY (Benevolent Tumor Tissue Repository Fighting for the Legacy of our Young). Minnesota Spinal Cord Injury ...
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