Diagnosis
A healthcare professional may suspect Gilbert syndrome if a person has unexplained jaundice or if the level of bilirubin is elevated in the blood. Other symptoms that suggest Gilbert syndrome as well as a few other liver conditions include dark urine and belly pain.
To rule out more-common liver conditions, a healthcare professional may order a complete blood count and liver function tests.
The combination of standard blood counts and liver enzymes with an elevated bilirubin level is an indicator of Gilbert syndrome. No other testing usually is needed, although genetic testing can confirm the diagnosis.
Treatment
Gilbert syndrome doesn't need treatment. The bilirubin levels in the blood may go up and down over time. Someone with Gilbert syndrome may sometimes have jaundice, which usually resolves on its on with no ill effects.
Self care
Certain life events, such as stress, can trigger episodes of higher bilirubin levels in Gilbert syndrome, leading to jaundice. Taking steps to manage those situations can help keep bilirubin levels under control.
These steps include:
- Make sure your health care providers know you have Gilbert syndrome. Because Gilbert syndrome affects the way your body processes certain medicines, every healthcare professional you visit needs to know that you have the condition.
- Eat a healthy diet. Don't follow extremely low-calorie diets. Stick to a routine eating schedule, and avoid fasting or skipping meals.
- Manage stress. Find ways to deal with the stresses in your life. Exercise, meditation and listening to music may be helpful.
Preparing for your appointment
Before your appointment, you might want to jot down questions to ask, including:
- Is my bilirubin level significantly elevated?
- Should I have my bilirubin level tested again?
- Could Gilbert syndrome cause my symptoms?
- Could the medicines I'm taking for other conditions worsen Gilbert syndrome?
- Can Gilbert syndrome cause complications or lead to liver damage?
- Do I have a higher risk of gallstones?
- Is there anything I can do to maintain a low bilirubin level?
- Is jaundice harmful?
- How likely is it that my children will inherit Gilbert syndrome?
