A few examples of complementary therapies that have been tried in children with Rett syndrome include:
- Music therapy
- Hydrotherapy, which involves swimming or moving in water
- Animal-assisted therapy, such as using therapy dogs or therapeutic horseback riding
Although there's not much evidence that these approaches are effective, some parents who have used them report good results.
If you think alternative or complementary therapies might help your child, talk to your doctor or therapist about the possible benefits and risks, and how the approach might fit into the medical treatment plan.
Sept. 17, 2015
- Rett syndrome fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/rett/detail_rett.htm. Accessed Aug. 3, 2015.
- Rett syndrome. National Organization for Rare Diseases. https://rarediseases.org/rare-diseases/rett-syndrome/. Accessed Aug. 3, 2015.
- Rett syndrome. Genetics Home Reference. http://ghr.nlm.nih.gov/condition/rett-syndrome. Accessed Aug. 3, 2015.
- Schultz RJ, et al. Rett syndrome. http://www.uptodate.com/home. Accessed Aug. 3, 2015.
- Lotan M. Alternative therapeutic intervention for individuals with Rett syndrome. The Scientific World Journal. 2007;29:698.
- Rett syndrome: Condition information. Eunice Kennedy Shriver National Institute of Child Health and Human Development. https://www.nichd.nih.gov/health/topics/rett/conditioninfo/Pages/default.aspx. Accessed Aug. 5, 2015.
- Symons FJ, et al. Parent-reported pain in Rett syndrome. Clinical Journal of Pain. 2013;29:744.
- Byiers BJ, et al. Seizures and pain uncertainty associated with parenting stress and Rett syndrome. Journal of Child Neurology. 2014;29:526.
- Hoecker JL (expert opinion). Mayo Clinic, Rochester, Minn. Aug. 17, 2015.
- Tervo RC (expert opinion). Mayo Clinic, Rochester, Minn. Aug. 28, 2015.