Tay-Sachs disease care at Mayo Clinic

Mayo Clinic doctors provide compassionate care for children who have Tay-Sachs disease, and take the time to address the family's concerns and questions. Teams of experts work together to personalize your child's care, and offer support for your family.

Your Mayo Clinic care team

Mayo Clinic doctors trained in pediatric neurology, physical medicine and rehabilitation, genetic disorders (medical geneticists) and other specialties work together to treat children who have Tay-Sachs disease.

Your Mayo Clinic care team will provide treatment and follow-up care for your child, and coordinate the treatment and support plan with your child's primary care doctor or pediatrician.

Advanced diagnosis and treatment

Mayo Clinic experts are constantly researching neurological disorders to better understand them and develop improved diagnostic tests and treatments. Mayo Clinic offers sophisticated diagnostic testing in children and genetic screening in parents for Tay-Sachs disease. Mayo Clinic respiratory therapists have extensive experience in providing therapies, such as CPT, to children with Tay-Sachs disease.

Nationally recognized expertise

Every year, Mayo Clinic doctors diagnose and care for children who have Tay-Sachs disease and offer support to their families.

Mayo Clinic in Rochester, Minn., and Mayo Clinic in Jacksonville, Fla., are ranked among the Best Hospitals for neurology and neurosurgery by U.S. News & World Report. Mayo Clinic in Phoenix/Scottsdale, Ariz., is ranked highly performing for neurology and neurosurgery by U.S. News & World Report. Mayo Clinic Children's Center in Rochester is ranked the No. 1 hospital in Minnesota, and the five-state region of Iowa, Minnesota, North Dakota, South Dakota and Wisconsin, according to U.S. News & World Report's 2021-2022 "Best Children's Hospitals" rankings.

Expertise and rankings


Mayo Clinic experienced specialists from many disciplines, including pediatric neurology, genetics and physical medicine and rehabilitation work together to treat children with Tay-Sachs disease and other rare neurological diseases.


Mayo Clinic neurologists, geneticists and other experts actively research the causes, diagnostic tests and new treatment options for Tay-Sachs disease and other rare neurological diseases.

Learn more about Mayo Clinic's neurosurgery and neurology departments' expertise and rankings.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.