If you've been diagnosed with cancer, knowing what to expect and making plans for how to proceed can help make this stressful time easier.By Mayo Clinic Staff
Learning that you have cancer is a difficult experience. After your cancer diagnosis, you may feel anxious, afraid or overwhelmed and wonder how you can cope during the days ahead. Here are 11 suggestions for coping with a cancer diagnosis.
Try to obtain as much basic, useful information about your cancer diagnosis as you need in order to make decisions about your care.
Write down your questions and concerns beforehand and bring them with you. Consider asking:
- What kind of cancer do I have?
- Where is the cancer?
- Has it spread?
- Can my cancer be treated?
- What is the chance that my cancer can be cured?
- What other tests or procedures do I need?
- What are my treatment options?
- How will the treatment benefit me?
- What can I expect during treatment?
- What are the side effects of the treatment?
- When should I call the doctor?
- What can I do to prevent my cancer from recurring?
- How likely are my children or other family members to get cancer?
Consider bringing a family member or friend with you to your first few doctor appointments to help you remember what you hear.
You might also want to consider how much you want to know about your cancer. Some people want all the facts and details, so they can be very involved in the decision-making process. Others prefer to learn the basics and leave details and decisions to their doctors. Think about which approach works best for you. Let your health care team know what you'd prefer.
Maintain honest, two-way communication with your loved ones, doctors and others after your cancer diagnosis. You may feel particularly isolated if people try to protect you from bad news or if you try to put up a strong front. If you and others express emotions honestly, you can all gain strength from each other.
Now — after your cancer diagnosis and before you begin treatment — is the best time to plan for changes. Prepare yourself now so that you'll be better able to cope later.
Ask your doctor what changes you should anticipate. If drugs will cause hair loss, advice from image experts about clothing, makeup, wigs and hairpieces may help you feel more comfortable and attractive. Insurance often helps pay for wigs, prostheses and other adaptive devices.
Members of cancer support groups may be particularly helpful in this area and can provide tips that have helped them and others.
Also consider how treatment will impact your daily activities. Ask your doctor whether you can expect to continue your normal routine. You may need to spend time in the hospital or have frequent medical appointments. If your treatment will require a leave of absence from your normal duties, make arrangements for this.
This can improve your energy level. Choose a healthy diet consisting of a variety of foods and get adequate rest in order to help you manage the stress and fatigue of the cancer and its treatment.
Exercise and participating in enjoyable activities also may help. Recent data suggest that people who maintain some physical exercise during treatment not only cope better but also may live longer.
Often friends and family can run errands, provide transportation, prepare meals and help you with household chores. Learn to accept their help. Accepting help gives those who care about you a sense of making a contribution at a difficult time.
Also encourage your family to accept help if it's needed. A cancer diagnosis affects the entire family and adds stress, especially to the primary caregivers. Accepting help with meals or chores from neighbors or friends can go a long way in preventing caregiver burnout.
Determine what's really important in your life. Find time for the activities that are most important to you and give you the most meaning.
If needed, try to find a new openness with loved ones. Share your thoughts and feelings with them. Cancer affects all of your relationships. Communication can help reduce the anxiety and fear that cancer can cause.
Maintain your normal lifestyle, but be open to modifying it as necessary. Take one day at a time. It's easy to overlook this simple strategy during stressful times. When the future is uncertain, organizing and planning may suddenly seem overwhelming.
Many unexpected financial burdens can arise as a result of a cancer diagnosis. Your treatment may require time away from work or an extended time away from home. Consider the additional costs of medications, medical devices, traveling for treatment and parking fees at the hospital.
Many clinics and hospitals keep lists of resources to help you financially during and after your cancer treatment. Talk with your health care team about your options.
Questions to ask include:
- Will I have to take time away from work?
- Will my friends and family need to take time away from work to be with me?
- Will my insurance pay for these treatments?
- Will my insurance cover the cost of medications?
- How much will my out-of-pocket costs be?
- If insurance won't pay for my treatment, are there assistance programs that can help?
- Do I qualify for disability benefits?
- How does my diagnosis affect my life insurance?
Sometimes it will feel as if people who haven't experienced a cancer diagnosis can't fully understand how you're feeling. It may help to talk to people who have been in your situation. Other cancer survivors can share their experiences and give you insight into what you can expect during treatment.
You may have a friend or family member who has had cancer. Or you can connect with other cancer survivors through support groups. Ask your doctor about support groups in your area or contact your local chapter of the American Cancer Society. Online message boards also bring cancer survivors together. Start with the American Cancer Society's Cancer Survivors Network.
Some old stigmas associated with cancer still exist. Your friends may wonder if your cancer is contagious. Co-workers may doubt you're healthy enough to do your job, and some may withdraw for fear of saying the wrong thing. Many people will have questions and concerns.
Determine how you'll deal with others' behaviors toward you. By and large, others will take their cues from you. Remind friends that even if cancer has been a frightening part of your life, it shouldn't make them afraid to be around you.
Just as each person's cancer treatment is individualized, so is the coping strategy. Ideas to try:
- Practice relaxation techniques.
- Share your feelings honestly with family, friends, a spiritual adviser or a counselor.
- Keep a journal to help organize your thoughts.
- When faced with a difficult decision, list the pros and cons for each choice.
- Find a source of spiritual support.
- Set aside time to be alone.
- Remain involved with work and leisure activities as much as you can.
What comforted you through rough times before your cancer diagnosis is likely to help ease your worries now, whether that's a close friend, religious leader or a favorite activity that recharges you. Turn to these comforts now, but also be open to trying new coping strategies.
Sept. 07, 2017
- Taking time: Support for people with cancer. National Cancer Institute. http://www.cancer.gov/cancertopics/takingtime. Accessed Aug. 22, 2017.
- Rock CL, et al. Nutrition and physical activity guidelines for cancer survivors. CA: A Cancer Journal for Clinicians. 2012;62:242.
- Ballard-Barbash R, et al. Physical activity, biomarkers and disease outcomes in cancer survivors: A systematic review. Journal of the National Cancer Institute. 2012;104:815.
- Moynihan TJ (expert opinion). Mayo Clinic, Rochester, Minn. Aug. 22, 2017.