If your child has dwarfism, you can take a number of steps to help him or her cope with challenges and function independently:
Aug. 27, 2011
- Seek help. The nonprofit organization Little People of America provides social support, information about disorders, advocacy opportunities and resources. Many people with dwarfism stay actively involved in this organization throughout their lives.
- Modify your home. Make changes to your home, such as putting specially designed extensions on light switches, installing lower handrails in stairways and replacing doorknobs with levers. The Little People of America website provides links to companies that sell adaptive products, such as size-appropriate furniture and everyday household tools.
- Talk to educators. Talk to school personnel about what dwarfism is, how it affects your child, what needs your child may have in the classroom and how the school can help meet those needs.
- Talk about teasing. Encourage your child to talk to you about his or her feelings, and practice responses to insensitive questions and teasing.
- Dwarfism: Frequently asked questions. Little People of America. http://www.lpaonline.org/mc/page.do?sitePageId=84634. Accessed July 3, 2011.
- Wright MJ, et al. Clinical management of achondroplasia. Archives of Diseases in Childhood. In press. Accessed July 3, 2011.
- Canale ST. Osteochondrosis or Epiphysitis and Other Miscellaneous Affections. In: Canale ST, et al. Campbell's Operative Orthopaedics. 11th ed. Philadelphia, Pa.:Mosby Elsevier; 2007. http://www.mdconsult.com/books/page.do?eid=4-u1.0-B978-0-323-03329-9..50032-5--cesec54&isbn=978-0-323-03329-9&sid=1176248236&uniqId=263706808-3#4-u1.0-B978-0-323-03329-9..50032-5--cesec59. Accessed July 3, 2011.
- Hypochondroplasia. Genetics Home Reference. http://ghr.nlm.nih.gov/condition=hypochondroplasia. Accessed July 3, 2011.
- Spondyloepiphyseal dysplasia congenita. Genetics Home Reference. http://ghr.nlm.nih.gov/condition=spondyloepiphysealdysplasiacongenita. Accessed July 3, 2011.
- Diastrophic dysplasia. Genetics Home Reference. http://ghr.nlm.nih.gov/condition=diastrophicdysplasia. Accessed July 3, 2011.
- Hypopituitarism in children resulting in short stature. The Merck Manuals: The Merck Manual for Healthcare Professionals. http://www.merckmanuals.com/professional/print/sec13/ch161/ch161d.html. Accessed July 3, 2011.
- Learning about Turner syndrome. National Human Genome Research Institute. http://www.genome.gov/pfv.cfm?pageID=19519119. Accessed July 3, 2011.
- Achondroplasia. Genetics Home Reference. http://ghr.nlm.nih.gov/condition=achondroplasia. Accessed July 3, 2011.
- Richmond EJ. Diagnosis of growth hormone deficiency in children. http://www.uptodate.com/home/index.html. Accessed July 3, 2011.
- Horton WA, et al. Achondroplasia. The Lancet. 2007;370:162.
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