HHT care at Mayo Clinic
Mayo Clinic is a hereditary hemorrhagic telangiectasia (HHT) Center of Excellence. This means that CureHHT has designated Mayo Clinic as a center that provides state-of-the-art care and has experts in diagnosing and treating all aspects of this disorder in children and adults. Mayo Clinic provides whole-person care that meets the needs of people and families with HHT.
Your Mayo Clinic care team
At Mayo Clinic, specialists from many departments work together to diagnose and treat people with hereditary hemorrhagic telangiectasia (HHT). These include specialists in pulmonary medicine; clinical genomics; pediatric pulmonary; cardiovascular disease; neurology; neurosurgery; Otolaryngology (ENT)/Head and Neck Surgery; gastroenterology and hepatology; and radiology.
Advanced diagnosis and treatment
Mayo Clinic offers in-house comprehensive genetic testing for HHT and similar vascular malformation syndromes. This test (LAB 11256) tests for common and rare genetic mutations associated with HHT and similar vascular disorders. Mayo Clinic's Center for Individualized Medicine offers personalized consultations for rare or undiagnosed conditions. Mayo pharmacists compound a special rose geranium in sesame oil nose spray for nosebleeds of people with HHT.
Expertise and rankings
HHT is a rare disease that can be difficult to diagnose. People with this uncommon disorder sometimes don't receive a correct diagnosis for more than a decade.
Mayo Clinic is a hereditary hemorrhagic telangiectasia (HHT) Center of Excellence. It's the only HHT Center of Excellence in Minnesota and one of the few in the Upper Midwest. This means that Mayo Clinic has been designated by Cure HHT as having expertise in diagnosing and treating all aspects of this disorder in both children and adults.
Mayo Clinic specialists see hundreds of people with HHT and provides state-of-the-art care for HHT.