Bardet-Biedl syndrome care at Mayo Clinic

Mayo Clinic experts treat both children and adults who have Bardet-Biedl syndrome.

  • Team approach. Mayo Clinic specialists in ophthalmology, endocrinology, clinical genomics and nephrology treat children and adults with Bardet-Biedl syndrome. Working as a team, medical professionals from various specialties talk with you to set goals and develop a customized evaluation and treatment plan.
  • Thorough diagnosis. Mayo Clinic provides diagnostic evaluation of rare and inherited conditions like Bardet-Biedl syndrome. The team arranges tests and procedures, depending on symptoms and needs. Specialists take a comprehensive family history and can help you and your family learn about how BBS may affect them.

Expertise and rankings

Whether you or your child has Bardet-Biedl syndrome, you can expect the highest level of expertise and care at Mayo Clinic. This includes:

  • Experts in BBS. You'll receive care from Mayo Clinic doctors and other healthcare professionals with expertise and experience in treating Bardet-Biedl syndrome.
  • Latest diagnostic and treatment options. Mayo Clinic provides the newest genetic testing techniques. Mayo offers the latest treatments, including testing and medical expertise to help decide which option is best.
  • Comprehensive children's hospital and outpatient services. Mayo Eugenio Litta Children's Hospital and Mayo Clinic Children's specialists provide comprehensive care for the diagnosis and treatment of BBS. Children at Mayo Clinic have access to the latest medical treatments and technology, along with clinical trials, in a caring environment.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.