If your child is diagnosed with Wilms' tumor, you may be referred to a doctor who specializes in treating cancer (oncologist) or a surgeon who specializes in kidney surgery (urologist).
What you can do
To prepare for the appointment:
- Make a list of all medications, vitamins, herbs, oils and other supplements that your child is taking.
- Ask a family member or friend to come with you to help you remember all the information provided to you during the appointment.
- Create a list of questions to ask your child's doctor.
For Wilms' tumor, some basic questions to ask the doctor include:
- What kinds of tests does my child need?
- What stage is my child's cancer?
- What treatments are available, and which do you recommend?
- What types of side effects can I expect from each treatment?
- Will I need to restrict my child's activity or change his or her diet during treatment?
- What's my child's outlook?
- What is the likelihood that the cancer will come back?
- Are there any brochures or other printed material that I can have? What websites do you recommend?
Don't hesitate to ask other questions during your appointment.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Be ready to answer them to reserve time to go over points you want to focus on. Your doctor may ask, for example:
- When did you first notice your child's symptoms?
- Is there a history of cancer, including childhood cancer, in your family?
- Does your child have any family history of birth defects, especially of the genitals or urinary tract?
Aug. 16, 2017
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- Al-Hussain T, et al. Wilms tumor: An update. Advances in Anatomic Pathology. 2014;21:166.
- Cost NG, et al. Oncologic outcomes of partial versus radical nephrectomy for unilateral Wilms tumor. Pediatric Blood & Cancer. 2012;58:898.
- Lubahn JD, et al. Correlation between preoperative staging computerized tomography and pathological findings after nodal sampling in children with Wilms tumor. Journal of Urology. 2012;188:1500.
- Cost NG, et al. Pathological review of Wilms tumor nephrectomy specimens and potential implications for nephron sparing surgery in Wilms tumor. Journal of Urology. 2012;188:1506.
- Wilms tumor. American Cancer Society. http://www.cancer.org/cancer/wilmstumor. Accessed Jan. 13, 2017.
- Chintagumpala M, et al. Presentation, diagnosis, and staging of Wilms tumor. http://www.uptodate.com. Accessed Jan. 14, 2017.
- Chintagumpala M, et al. Treatment and prognosis of Wilms tumor. http://www.uptodate.com. Accessed Jan. 16, 2017.
- Children with cancer: A handbook for parents. National Cancer Institute. https://www.cancer.gov/publications/patient-education/children-with-cancer.pdf. Accessed Jan. 16, 2017.
- AskMayoExpert. Wilms tumor. Rochester, Minn.: Mayo Foundation for Medical Education and Research; 2016.
- Granberg, CF (expert opinion). Mayo Clinic, Rochester, Minn. Mar. 1, 2017.
- Arndt CA (expert opinion). Mayo Clinic, Rochester, Minn. Feb. 1, 2017.
- National Library of Medicine. Your guide to understanding genetic conditions: Beckwith-Wiedemann syndrome. Genetics Home Reference: https://ghr.nlm.nih.gov/condition/beckwith-wiedemann-syndrome. Accessed Feb. 2, 2017.