Preparing for your appointment

If your child is diagnosed with Wilms' tumor, you may be referred to a doctor who specializes in treating cancer (oncologist) or a surgeon who specializes in kidney surgery (urologist).

What you can do

To prepare for the appointment:

  • Make a list of all medications, vitamins, herbs, oils and other supplements that your child is taking.
  • Ask a family member or friend to come with you to help you remember all the information provided to you during the appointment.
  • Create a list of questions to ask your child's doctor.

For Wilms' tumor, some basic questions to ask the doctor include:

  • What kinds of tests does my child need?
  • What stage is my child's cancer?
  • What treatments are available, and which do you recommend?
  • What types of side effects can I expect from each treatment?
  • Will I need to restrict my child's activity or change his or her diet during treatment?
  • What's my child's outlook?
  • What is the likelihood that the cancer will come back?
  • Are there any brochures or other printed material that I can have? What websites do you recommend?

Don't hesitate to ask other questions during your appointment.

What to expect from your doctor

Your doctor is likely to ask you a number of questions. Be ready to answer them to reserve time to go over points you want to focus on. Your doctor may ask, for example:

  • When did you first notice your child's symptoms?
  • Is there a history of cancer, including childhood cancer, in your family?
  • Does your child have any family history of birth defects, especially of the genitals or urinary tract?
May 04, 2017
References
  1. Ritchey ML, et al. Pediatric urologic oncology: Renal and adrenal. In: Campbell-Walsh Urology. 11th ed. Philadelphia, Pa.: Elsevier; 2016. http://www.clinicalkey.com. Accessed Jan. 13, 2017.
  2. Ferri FF. Nephroblastoma. In: Ferri's Clinical Advisor. Philadelphia, Pa.: Elsevier; 2017. http://www.clinicalkey.com. Accessed Jan. 13, 2017.
  3. Kieran K, et al. Current surgical standards of care in Wilms tumor. Urologic Oncology: Seminars and Original Investigations. 2016;34:13.
  4. Al-Hussain T, et al. Wilms tumor: An update. Advances in Anatomic Pathology. 2014;21:166.
  5. Cost NG, et al. Oncologic outcomes of partial versus radical nephrectomy for unilateral Wilms tumor. Pediatric Blood & Cancer. 2012;58:898.
  6. Lubahn JD, et al. Correlation between preoperative staging computerized tomography and pathological findings after nodal sampling in children with Wilms tumor. Journal of Urology. 2012;188:1500.
  7. Cost NG, et al. Pathological review of Wilms tumor nephrectomy specimens and potential implications for nephron sparing surgery in Wilms tumor. Journal of Urology. 2012;188:1506.
  8. Wilms tumor. American Cancer Society. http://www.cancer.org/cancer/wilmstumor. Accessed Jan. 13, 2017.
  9. Chintagumpala M, et al. Presentation, diagnosis, and staging of Wilms tumor. http://www.uptodate.com. Accessed Jan. 14, 2017.
  10. Chintagumpala M, et al. Treatment and prognosis of Wilms tumor. http://www.uptodate.com. Accessed Jan. 16, 2017.
  11. Children with cancer: A handbook for parents. National Cancer Institute. https://www.cancer.gov/publications/patient-education/children-with-cancer.pdf. Accessed Jan. 16, 2017.
  12. AskMayoExpert. Wilms tumor. Rochester, Minn.: Mayo Foundation for Medical Education and Research; 2016.
  13. Granberg, CF (expert opinion). Mayo Clinic, Rochester, Minn. Mar. 1, 2017.
  14. Arndt CA (expert opinion). Mayo Clinic, Rochester, Minn. Feb. 1, 2017.
  15. National Library of Medicine. Your guide to understanding genetic conditions: Beckwith-Wiedemann syndrome. Genetics Home Reference: https://ghr.nlm.nih.gov/condition/beckwith-wiedemann-syndrome. Accessed Feb. 2, 2017.