If you have signs and symptoms that cause concern, start by seeing your family doctor or a general practitioner. If your doctor suspects you may have a kidney problem, such as nephrotic syndrome, you may be referred to a doctor who specializes in the kidneys (nephrologist).
Because appointments can be brief, and because there's often a lot of ground to cover, it's a good idea to be well prepared. Here's some information to help you get ready, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Write down key personal information, including any major stresses or recent life changes.
- Make a list of all medications, as well as any vitamins or supplements, that you're taking.
- Consider taking a family member or friend along. Sometimes it can be difficult to remember all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Your time with your doctor is limited, so preparing a list of questions will help you make the most of your time together. List your questions from most important to least important in case time runs out. For nephrotic syndrome, some basic questions to ask your doctor include:
- What is likely causing my nephrotic syndrome?
- What tests will I need?
- Is my condition likely temporary or chronic?
- Can my nephrotic syndrome be cured?
- What are my treatment options?
- What are the risks and benefits of each treatment?
- Is there one treatment that you think is best for me?
- Are there changes I can make to my diet to help me feel better?
- Should I meet with a dietitian to learn more about changing my diet?
- I have other health conditions. How can I best manage them together?
- Are there any restrictions that I need to follow?
- Should I see a specialist? What will that cost, and will my insurance cover it?
- Is there a generic alternative to the medicine you're prescribing me?
- Are there brochures or other printed material that I can take with me? What websites do you recommend?
- What will determine whether I should plan for a follow-up visit?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask other questions that come up.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may allow more time to cover other points you want to address. Your doctor may ask:
Jan. 11, 2012
- When did you first begin experiencing symptoms?
- Have your symptoms been continuous or occasional?
- How severe are your symptoms?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- Nephrotic syndrome in adults. National Institute of Diabetes and Digestive and Kidney Diseases. http://kidney.niddk.nih.gov/KUDiseases/pubs/nephrotic/index.aspx. Accessed Dec. 15, 2011.
- Nachman PH, et al. Primary glomerular disease. In: Brenner BM. Brenner & Rector's The Kidney. 8th ed. Philadelphia, Pa.: Saunders Elsevier; 2008. http://www.mdconsult.com/books/about.do?about=true&eid=4-u1.0-B978-1-4160-3105-5..X5001-4--TOP&isbn=978-1-4160-3105-5&uniqId=230100505-57. Accessed Dec. 16, 2011.
- Childhood nephrotic syndrome. National Institute for Diabetes and Digestive and Kidney Diseases. http://kidney.niddk.nih.gov/kudiseases/pubs/childkidneydiseases/nephrotic_syndrom/index.htm. Accessed Dec. 15, 2011.
- Kelepouris E, et al. Overview of heavy proteinuria and the nephrotic syndrome. http://www.uptodate.com/home/index.html. Accessed Dec. 16, 2011.
- Nephrotic syndrome. In: Ferri FF. Ferri's Clinical Advisor 2012: 5 Books in 1. Philadelphia, Pa.: Mosby Elsevier; 2012. http://www.mdconsult.com/books/about.do?about=true&eid=4-u1.0-B978-0-323-05611-3..C2009-0-38601-8--TOP&isbn=978-0-323-05611-3&uniqId=291436269-101. Accessed Dec. 15, 2011.
- Nephrotic syndrome. ADA Nutrition Care Manual. http://nutritioncaremanual.org/index.cfm. Accessed Dec. 15, 2011.
- Anderson CF (expert opinion). Mayo Clinic, Rochester, Minn. Dec. 17, 2011.
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