When you learn your child has microcephaly, you may experience a range of emotions, including anger, fear, worry, sorrow and guilt. You may not know what to expect, and you may worry about your child's future. The best antidote for fear and worry is information and support. Prepare yourself:
May. 30, 2012
- Find a team of trusted professionals. You'll need to make important decisions about your child's education and treatment. Seek a team of doctors, teachers and therapists you trust. These professionals can help evaluate the resources in your area and help explain state and federal programs for children with disabilities.
- Seek out other families who are dealing with the same issues. Your community may have support groups for parents of children with developmental disabilities. You may also find online support groups.
- Hay WW,.et al. Current Diagnosis & Treatment: Pediatrics. 20th ed. New York, N.Y.: The McGraw-Hill Companies; 2011. http://www.accessmedicine.com/content.aspx?aID=6585048. Accessed April 8, 2012.
- NINDS microcephaly information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/microcephaly/microcephaly.htm. Accessed April 8, 2012.
- Boom JA. Etiology and evaluation of microcephaly in infants. http://www.uptodate.com/index. Accessed April 8, 2012.
- Hoecker JL (expert opinion). Mayo Clinic, Rochester, Minn. April 10, 2012.