Marfan syndrome care at Mayo Clinic

Your Mayo Clinic care team

The Marfan Syndrome Clinic at Mayo Clinic's campus in Minnesota offers an experienced, integrated team of specialists that provide care for people of all ages with Marfan syndrome. A child treated for Marfan syndrome at Mayo Clinic can be followed by the same group of specialists throughout his or her life.

Experienced staff in the Adult Congenital Heart Disease Clinic at Mayo Clinic's campus in Florida provides care for adults with Marfan syndrome or related disorders.

Advanced diagnosis and treatment

At Mayo Clinic, a multidisciplinary team of doctors trained in cardiovascular diseases, cardiac surgery, cardiac imaging, medical genetics, ophthalmology and orthopedic surgery work together to confirm the diagnosis of Marfan syndrome, evaluate your symptoms and set up a treatment plan.

Cardiovascular care and genetics are the most commonly used services, but you also may need care for musculoskeletal system problems, vision problems and chronic pain.

Nationally recognized expertise

Mayo Clinic in Rochester, Minn., is ranked among the Best Hospitals for heart and heart surgery by U.S. News & World Report. Mayo Clinic also ranks among the Best Children's Hospitals for heart and heart surgery.

Mayo Clinic in Rochester, Minn., and Mayo Clinic in Scottsdale, Ariz., are ranked among the Best Hospitals and Mayo Clinic in Jacksonville, Fla., is ranked highly performing for orthopedics by U.S. News & World Report.

Learn more about Mayo Clinic's cardiac surgery, cardiovascular diseases and orthopedic surgery departments' expertise and rankings.

Expertise and rankings

  • Experience. Each year, Mayo Clinic doctors treat hundreds of adults and children with Marfan syndrome and related disorders. Mayo Clinic surgeons have extensive experience in Marfan-related heart and aortic surgery.
  • Teamwork. At Mayo Clinic's Marfan Syndrome Clinic, doctors from a wide variety of specialties work together to confirm the diagnosis of Marfan syndrome, evaluate your symptoms and set up a treatment plan.
  • Research. Mayo Clinic researchers have been involved in studies of diagnosis and treatment approaches for Marfan syndrome for decades. Mayo patients are among the first to benefit from new findings made at Mayo.

Mayo Clinic in Rochester, Minn., is ranked among the Best Hospitals for heart and heart surgery by U.S. News & World Report. Mayo Clinic also ranks among the Best Children's Hospitals for heart and heart surgery.

Mayo Clinic in Rochester, Minn., and Mayo Clinic in Scottsdale, Ariz., are ranked among the Best Hospitals and Mayo Clinic in Jacksonville, Fla., is ranked highly performing for orthopedics by U.S. News & World Report.

Learn more about Mayo Clinic's cardiac surgery, cardiovascular diseases and orthopedic surgery departments' expertise and rankings.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

Aug. 15, 2017
References
  1. Questions and answers about Marfan syndrome. National Institute of Arthritis and Musculoskeletal and Skin Diseases. http://www.niams.nih.gov/Health_Info/Marfan_Syndrome. Accessed Dec. 31, 2015.
  2. Ferri FF. Marfan's syndrome. In: Ferri's Clinical Advisor 2016. Philadelphia, Pa.: Mosby Elsevier; 2016. https://www.clinicalkey.com. Accessed Dec. 31, 2015.
  3. Kliegman RM, et al. Marfan syndrome. In: Nelson Textbook of Pediatrics. 20th ed. Philadelphia, Pa.: Elsevier; 2016. http://www.clinicalkey.com. Accessed Dec. 31, 2015.
  4. Wright MJ, et al. Genetics, clinical features and diagnosis of Marfan syndrome and related disorders. http://www.uptodate.com/home. Accessed Dec. 31, 2015.
  5. Wright MJ, et al. Management of Marfan syndrome and related disorders. http://www.uptodate.com/home. Accessed Dec. 31, 2015.
  6. AskMayoExpert. Marfan syndrome. Rochester, Minn.: Mayo Foundation for Medical Education and Research; 2015.
  7. Bowen JM (expert opinion). Mayo Clinic, Rochester, Minn. Feb. 10, 2016.
  8. Shaughnessy WJ (expert opinion). Mayo Clinic, Rochester, Minn. Feb. 23, 2016.
  9. Teens and Marfan syndrome. The Marfan Foundation. http://www.marfan.org/resource/fact-sheet/teens-and-marfan-syndrome#.VoWk_9hIiic. Accessed Dec. 31, 2015.
  10. Brown AY. Allscripts EPSi. Mayo Clinic, Rochester, Minn. Sept. 1, 2015.
  11. Zehr KJ, et al. Surgery for aneurysms of the aortic root: A 30-year experience. Circulation. 2004;110:1364.