Start by seeing your family doctor if you have signs or symptoms that worry you. If your doctor suspects you have leukemia, you may be referred to a doctor who specializes in diseases of the blood and bone marrow (hematologist).
Because appointments can be brief, and because there's often a lot of ground to cover, it's a good idea to be well-prepared. Here's some information to help you get ready, and know what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Write down key personal information, including any major stresses or recent life changes.
- Make a list of all medications, vitamins or supplements that you're taking.
- Consider taking a family member or friend along. Sometimes it can be difficult to remember all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Your time with your doctor is limited, so preparing a list of questions can help you make the most of your time together. List your questions from most important to least important in case time runs out. For leukemia, some basic questions to ask your doctor include:
- Do I have leukemia?
- What type of leukemia do I have?
- Do I need more tests?
- Does my leukemia need immediate treatment?
- What are the treatment options for my leukemia?
- Can any treatments cure my leukemia?
- What are the potential side effects of each treatment option?
- Is there one treatment you feel is best for me?
- How will treatment affect my daily life? Can I continue working or going to school?
- I have these other health conditions. How can I best manage them together?
- Should I see a specialist? What will that cost, and will my insurance cover it?
- Are there brochures or other printed material that I can take with me? What websites do you recommend?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask other questions during your appointment.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may allow more time later to cover other points you want to address. Your doctor may ask:
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- When did you first begin experiencing symptoms?
- Have your symptoms been continuous or occasional?
- How severe are your symptoms?
- What, if anything, seems to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- Have you ever had abnormal blood test results? If so, when?
- What you need to know about leukemia. National Cancer Institute. http://www.cancer.gov/publications/patient-education/wyntk-leukemia. Accessed March 11, 2015.
- Understanding leukemia. Leukemia & Lymphoma Society. http://www.lls.org/resourcecenter/freeeducationmaterials/leukemia/understandingleukemia. Accessed March 11, 2015.
- Taking time: Support for people with cancer. National Cancer Institute. http://www.cancer.gov/publications/patient-education/taking-time. Accessed March 11, 2015.
- Cook AJ. Decision Support System. Mayo Clinic, Rochester, Minn. March 11, 2015.
- Mesa RA (expert opinion). Mayo Clinic, Scottsdale/Phoenix, Ariz. March 11, 2015.