Make an appointment with your primary care doctor if you have any signs or symptoms that worry you. You may be referred to a specialist in digestive diseases (gastroenterologist), or to another specialist, depending on your symptoms. Here's some information to help you get ready for your appointment, and what to expect from your doctor.
What you can do
- Be aware of any pre-appointment restrictions. At the time you make the appointment, be sure to ask if there's anything you need to do in advance, such as restrict your diet.
- Write down any symptoms you're experiencing, including any that may seem unrelated to the reason for which you scheduled the appointment.
- Write down key personal information, including any major stresses or recent life changes. Learn if you have any liver disease in your family by asking your family members, if possible.
- Make a list of all medications, vitamins or supplements that you're taking.
- Take a family member or friend along to help you remember what's been discussed.
- Write down questions to ask your doctor.
Questions to ask your doctor
Some basic questions to ask your doctor include:
- What's the most likely cause of my symptoms?
- What kinds of tests do I need?
- Is my condition temporary or will I always have it?
- What treatments are available? And, what do you suggest for me?
- I have other health conditions. How can I best manage these conditions together?
- Are there any restrictions that I need to follow?
- Are there any brochures or other printed material that I can take with me? What websites do you recommend?
Don't hesitate to ask other questions during your appointment.
What to expect from your doctor
Be ready to answer questions your doctor may ask:
- When did you begin experiencing symptoms?
- Have your symptoms been continuous or do they come and go?
- How severe are your symptoms?
- Does anything seem to improve your symptoms?
- What, if anything, appears to worsen your symptoms?
- Does anyone in your family have hemochromatosis?
- How many alcoholic beverages do you drink in a week?
- Are you taking iron supplements or vitamin C?
- Do you have a history of viral hepatitis, such as hepatitis C?
- Have you required blood transfusions before?
Dec. 22, 2015
- Ferri FF. Hemochromatosis. In: Ferri's Clinical Advisor 2016. Philadelphia, Pa.: Mosby Elsevier; 2016. https://www.clinicalkey.com. Accessed Sept. 5, 2015.
- Crownover BK, et al. Hereditary hemochromatosis. American Family Physician. 2013;87:183.
- Salgia RJ, et al. Diagnosis and management of hereditary hemochromatosis. Clinics in Liver Disease. 2015;19:187.
- Hemochromatosis. National Institute of Diabetes and Digestive and Kidney Diseases. http://www.niddk.nih.gov/health-information/health-topics/liver-disease/hemochromatosis/Pages/facts.aspx. Accessed Sept. 5, 2015.
- What is hemochromatosis? National Heart, Lung, and Blood Institute. http://www.nhlbi.nih.gov/health/health-topics/topics/hemo/#. Accessed Sept. 5, 2015.
- Guidance for industry — Variances for blood collection from individuals with hereditary hemochromatosis. U.S. Food and Drug Administration. http://www.fda.gov/biologicsbloodvaccines/guidancecomplianceregulatoryinformation/guidances/blood/ucm076719.htm. Accessed Sept. 5, 2015.
- Picco MF (expert opinion). Mayo Clinic, Jacksonville, Fla. Sept. 24, 2015.