Why choose Mayo Clinic

By Mayo Clinic Staff


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Patient stories

Volleyball Player Realizes Her Dream With Help From Her Mayo Clinic Team

As senior captain of her high school volleyball team, Brooke Johnson was determined to lead her squad to the state tournament. Never mind that the team hadn?t made it there before. Or that her small school had never sent any athletic team to a state tournament. Or that Brooke had health issues that made playing [...]

  • Experience. Ehlers-Danlos is a rare condition, so it can be difficult to find a doctor that has experience in treating the disorder. Mayo Clinic doctors see hundreds of people with Ehlers-Danlos syndrome every year.
  • Team approach. Ehlers-Danlos syndrome affects many different body systems, so it's important to have different specialists involved in your care. At Mayo Clinic, your team may include specialists in medical genetics, physical medicine and rehabilitation, orthopedics, dermatology, and neurology — as well as vascular, cardiovascular, neurologic and pediatric surgeons, if necessary.
  • Long-term management. The goal at Mayo Clinic is to establish a long-term management plan for people with Ehlers-Danlos syndrome to be managed by their local primary care physician.
Aug. 20, 2015