Ehlers-Danlos syndrome care at Mayo Clinic

  • Your Mayo Clinic care team. Ehlers-Danlos syndrome affects many different body systems, so it's important to have different specialists involved in your care. At Mayo Clinic, your team may include specialists in medical genetics, physical medicine and rehabilitation, orthopedics, dermatology, and neurology — as well as vascular, cardiovascular, neurological and pediatric surgeons, if necessary.
  • Experience. Ehlers-Danlos syndrome is a rare condition, so it can be difficult to find a doctor that has experience in treating the disorder. Mayo Clinic doctors see hundreds of people with Ehlers-Danlos syndrome every year.
  • Long-term management. The goal at Mayo Clinic is to establish a long-term management plan for people with Ehlers-Danlos syndrome to be managed by their local primary care physician.

Mayo Clinic in Rochester, Minn., and Mayo Clinic in Scottsdale, Ariz., are ranked among the Best Hospitals and Mayo Clinic in Jacksonville, Fla., is ranked highly performing for orthopedics by U.S. News & World Report.

Mayo Clinic in Rochester, Minn., is ranked among the Best Hospitals for rehabilitation by U.S. News & World Report.

The Mayo Clinic experience and patient stories

Our patients tell us that the quality of their interactions, our attention to detail and the efficiency of their visits mean health care like they've never experienced. See the stories of satisfied Mayo Clinic patients.

Expertise and rankings

Because Ehlers-Danlos syndrome is a rare condition, it may be difficult to find a doctor with experience diagnosing and treating the disorder. But, Mayo Clinic doctors care for more than 400 adults and children with Ehlers-Danlos syndrome each year.

Mayo Clinic in Rochester, Minn., and Mayo Clinic in Scottsdale, Ariz., are ranked among the Best Hospitals and Mayo Clinic in Jacksonville, Fla., is ranked highly performing for orthopedics by U.S. News & World Report.

Mayo Clinic in Rochester, Minn., is ranked among the Best Hospitals for rehabilitation by U.S. News & World Report.

Locations, travel and lodging

Mayo Clinic has major campuses in Phoenix and Scottsdale, Arizona; Jacksonville, Florida; and Rochester, Minnesota. The Mayo Clinic Health System has dozens of locations in several states.

For more information on visiting Mayo Clinic, choose your location below:

Costs and insurance

Mayo Clinic works with hundreds of insurance companies and is an in-network provider for millions of people.

In most cases, Mayo Clinic doesn't require a physician referral. Some insurers require referrals, or may have additional requirements for certain medical care. All appointments are prioritized on the basis of medical need.

Learn more about appointments at Mayo Clinic.

Please contact your insurance company to verify medical coverage and to obtain any needed authorization prior to your visit. Often, your insurer's customer service number is printed on the back of your insurance card.

Oct. 13, 2017
References
  1. Pauker SP, et al. Clinical manifestations and diagnosis of Ehlers-Danlos syndrome. https://www.uptodate.com/contents/search. Accessed June 29, 2017.
  2. Ferri FF. Ehlers-Danlos syndrome. In: Ferri's Clinical Advisor 2017. Philadelphia, Pa.: Elsevier; 2017. https://www.clinicalkey.com. Accessed June 29, 2017.
  3. AskMayoExpert. Ehlers-Danlos syndrome. Rochester, Minn.: Mayo Foundation for Medical Education and Research; 2016.
  4. Pauker SP, et al. Overview of the management of Ehlers-Danlos syndrome. https://www.uptodate.com/contents/search. Accessed June 29, 2017.
  5. Ehlers Danlos syndrome. National Organization for Rare Disorders. https://rarediseases.org/rare-diseases/ehlers-danlos-syndrome. Accessed July 1, 2017.
  6. Byers PH, et al. Diagnosis, natural history, and management in vascular Ehlers-Danlos syndrome. American Journal of Medical Genetics Part C (Seminars in Medical Genetics). 2017;175C:40.
  7. An educator's guide: Meeting the needs of the Ehlers-Danlos child. Ehlers-Danlos National Foundation. https://ehlers-danlos.com/resource-guides/. Accessed July 2, 2017.
  8. Brown AY. Allscripts EPSi. Mayo Clinic, Rochester, Minn. March 30, 2017.