Patient stories

  1. Curtis Higgons, 22 year-old double lung transplant recipient at Mayo Clinic in Florida poses at the bowling alley with his bowling ball.

    Miracle Patient Overcomes Unique Challenges to Receive Double Lung Transplant

    To 22-year-old double lung transplant recipient Curtis Higgons, being dubbed the “miracle patient” by his physicians may seem somewhat overstated. But when you consider the medical challenges his doctors had to contend with in preparing him for a life-saving double lung transplant, his moniker may be well deserved. Curtis was born with cystic fibrosis, an inherited [...]

  2. Cystic Fibrosis Patient Says Double Lung Transplant Transformed His Life

    Nobody knows better than Jon Jantomaso how precious every breath can be. The 49-year-old realtor from Seminole, Florida, was diagnosed with cystic fibrosis at 2 months of age, and for the first 12 years of his life slept in a mist filled tent to help him breath and clear the mucus from his lungs. He [...]

  3. Nicole’s Journey From Nurse to Transplant Patient and Back

    When Nicole Jahns was just five months old, her parents – and her doctors – knew something was wrong. She wasn't gaining weight like a five-month-old should, and she wasn't, as her doctors put it, "thriving." They soon discovered why. Nicole had cystic fibrosis, an inherited disorder that affects the cells that produce mucus, sweat [...]

July 07, 2015