Raising a child with autism spectrum disorder can be physically exhausting and emotionally draining. These suggestions may help:
June 03, 2014
- Find a team of trusted professionals. You'll need to make important decisions about your child's education and treatment. A team, coordinated by your health care provider, may include social workers familiar with autism, teachers, and therapists who can help explain the resources in your area. Ask if the team includes a case manager or service coordinator who can help access financial services and government programs.
- Take time for yourself and other family members. Caring for a child with ASD can put stress on your personal relationships and your family. To avoid burnout, take time out to relax, exercise or enjoy your favorite activities. Try to schedule one-on-one time with your other children and plan date nights with your spouse or partner — even if it's just watching a movie together after the children go to bed.
- Seek out other families of children with ASD. Other families struggling with the challenges of ASD may have useful advice. Some communities have support groups for parents and siblings of children with ASD.
- Learn about the disorder. There are many myths and misconceptions about ASD. Learning the truth can help you better understand your child and his or her attempts to communicate. With time, you'll likely be rewarded by seeing your child grow and learn and even show affection — in his or her own way.
- Keep records of visits with service providers. Your child may have visits, evaluations and meetings with many people involved in his or her care. Keep an organized file of these meetings and reports to help you decide about treatment options and monitor progress.
- Stay current on new technologies and therapies. Researchers continue to explore new approaches to help children with ASD. See the Centers for Disease Control and Prevention website on autism spectrum disorders for helpful materials and links to resources.
- Autism spectrum disorder (ASD). Eunice Kennedy Shriver National Institute of Child Health & Human Development. http://www.nichd.nih.gov/health/topics/autism/Pages/default.aspx. Accessed Feb. 24, 2014.
- Volkmar F, et al. Practice parameter for the assessment and treatment of children and adolescents with autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry. 2014;53:237.
- LaBlanc LA, et al. Behavioral interventions for children with autism spectrum disorders. Pediatric Clinics of North America. 2012;59:147.
- Autism spectrum disorder. In: Diagnostic and Statistical Manual of Mental Disorders DSM-5. 5th ed. Arlington, Va.: American Psychiatric Association; 2013. http://www.psychiatryonline.org. Accessed Feb. 24, 2014.
- Weissman L, et al. Autism spectrum disorder in children and adolescents: Complementary and alternative therapies. http://www.uptodate.com/home. Accessed Feb. 24, 2014.
- Learn the signs — Act early: Concerned. Centers for Disease Control and Prevention. http://www.cdc.gov/ncbddd/actearly/concerned.html. Accessed Feb. 24, 2014.
- Autism spectrum disorder. American Psychiatric Association. http://www.psychiatry.org/dsm5. Accessed Feb. 24, 2014.
- A parent's guide to autism spectrum disorder. National Institute of Mental Health. http://www.nimh.nih.gov/health/publications/a-parents-guide-to-autism-spectrum-disorder/what-are-the-symptoms-of-asd.shtml. Accessed Feb. 24, 2014.
- Augustyn M. Terminology, epidemiology, and pathogenesis of autism spectrum disorder. http://www.uptodate.com/home. Accessed Feb. 24, 2014.
- Bridgemohan C. Surveillance and screening for autism spectrum disorder in primary care. http://www.uptodate.com/home. Accessed Feb. 24, 2014.
- Cheuk DKL, et al. Acupuncture for autism spectrum disorders (ASD). Cochrane Database of Systematic Reviews. http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD007992.pub2/abstract. Accessed March 3, 2014.
- American Academy of Pediatrics policy statement: Sensory integration therapies for children with developmental and behavioral disorders. Pediatrics. 2012;129:1186.
- Autism spectrum disorders (ASDs): Do vaccines cause autism spectrum disorders (ASDs)? Centers for Disease Control and Prevention. http://www.cdc.gov/ncbddd/autism/topics.html. Accessed Feb. 24, 2014.
- Autism fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/autism/detail_autism.htm. Accessed Feb. 24, 2014.
- Highlights of changes from DSM-IV-TR to DSM-5. American Psychiatric Association. http://www.psychiatry.org/dsm5. Accessed Feb. 24, 2014.
- Chelation: Therapy or "therapy"? National Capital Poison Center. http://www.poison.org/current/chelationtherapy.htm. Accessed Feb. 24, 2014.
- Patterson MC (expert opinion). Mayo Clinic, Rochester, Minn. March 24, 2014.
- Tervo RC (expert opinion). Mayo Clinic, Rochester, Minn. March 28, 2014.