诊断

用于诊断硬化性肠系膜炎的检查和程序包括:

  • 体格检查。在体格检查期间,您的医疗护理团队成员会查找可能有助于诊断的线索。例如,硬化性肠系膜炎往往会在上腹部形成肿块,医生可在体检时触摸到这类肿块。
  • 影像学检查。腹部影像学检查可显示硬化性肠系膜炎。影像学检查可能包括计算机断层(CT)扫描或磁共振成像(MRI)。
  • 取出组织样本进行检测(称为活检)。如果您出现了硬化性肠系膜炎的症状,可能需要进行活检来排除其他疾病,并做出明确诊断。活检样本可以在手术过程中采集,也可以用长针穿过皮肤采集。

    开始治疗之前,可通过活检进行确诊,排除其他的可能性,包括淋巴瘤和类癌等癌症。

治疗

您可能会在治疗另一种医疗状况期间被诊断患有硬化性肠系膜炎。如果您没有因硬化性肠系膜炎感到不适,您可能不需要治疗。相反,医生可能会建议您偶尔进行影像学检查以监测病情。

如果您开始出现硬化性肠系膜炎的症状,您可以选择开始治疗。

药物

使用治疗硬化性肠系膜炎的药物来控制炎症。这些药物可能包括:

  • 皮质类固醇。泼尼松等皮质类固醇药物可用于控制炎症。虽然皮质类固醇药物可以单独使用,但通常会与其他药物联合使用。考虑到副作用,这些药物通常不会使用超过 3 到 4 个月。
  • 激素治疗。他莫昔芬(Soltamox)等激素治疗可能会减缓疤痕组织的生长速度。他莫昔芬通常会与皮质类固醇或其他药物联合使用,可长期使用。他莫昔芬会增加血凝块风险,通常每日联合服用阿司匹林可以降低这种风险。黄体酮(Prometrium)可以用作他莫昔芬的替代品,但也会带来明显的副作用。
  • 其他药物。其他几种药物已被用于治疗硬化性肠系膜炎,例如硫唑嘌呤(Imuran、Azasan)、秋水仙碱(Colcrys、Mitigare)、环磷酰胺和沙利度胺(Thalomid)。

手术

如果瘢痕组织阻碍食物通过消化道,您可能需要接受手术。

准备您的预约

You may start by seeing your primary healthcare professional. Or you may be referred to a specialist in digestive diseases called a gastroenterologist.

Here's some information to help you get ready for your appointment.

What you can do

When you make the appointment, ask if there's anything you need to do in advance, such as fasting before having a specific test. Take a family member or friend along, if possible, to help you remember the information you're given.

Make a list of:

  • Your symptoms, including any that seem unrelated to the reason for your appointment.
  • Key personal information, including major stresses, recent life changes and family medical history.
  • All medicines, vitamins or other supplements you take, including the doses and the reason for taking each one.
  • Questions to ask your healthcare professional.

Some basic questions to ask your healthcare professional include:

  • What's likely causing my symptoms?
  • What tests do I need?
  • What's the best course of action or treatment?
  • I have these other health conditions. How can I best manage them together?
  • Are there restrictions I need to follow?
  • Should I see a specialist?
  • How can I manage symptoms until we have a diagnosis?
  • Are there brochures or other printed material I can have? What websites do you recommend?

Don't hesitate to ask other questions.

What to expect from your doctor

Your healthcare professional is likely to ask you several questions, such as:

  • When did your symptoms begin?
  • Do your symptoms come and go, or are they constant?
  • How severe are your symptoms?
  • What, if anything, seems to improve your symptoms?
  • What, if anything, appears to worsen your symptoms?
  • Do you have a history of belly surgery?
  • Have you had a belly injury?
  • Have you had unintended weight loss? How much have you lost since you started noticing a change in your weight?