The Mayo Clinic Congenital Disorders of Glycosylation (CDG) Clinic sees more patients with CDG than any other practice in the U.S. Mayo specialists of the rare disorder are world experts and have published more than 150 articles related to the condition. They collaborate closely with other departments, including neurology and pediatric neurology, to ensure you get exactly the care you need.

And they constantly strive to improve care through research. Mayo was the first institution in the U.S. to launch multicenter clinical studies with the involvement of an international association for people with CDG and currently leads a 13-center research consortium. This means, if needed, you have access to the very latest treatment options available and have an opportunity to help others with CDG.