Infographic: Congenital Heart Disease and Lifelong Care


Congenital Heart Disease: The Importance of Lifelong Care

Congenital heart diseases (CHD) are heart defects present at birth.

Some heart defects include:

  • Hole in heart
  • Defective vessels
  • Leaky valves
  • Missing heart chambers

Children born with CHD have a high survivability rate.

  • 40,000 children with CHD born annually (1% of all births)
  • 85% survive to adulthood
  • 1.4 million adults have CHD (2x as many adults are living with CHD than children)

Many with CHD may not realize they need continued care as adults.

  • Childhood treatments are not a cure
  • 50% stop treatment by age 13
  • 80% don't get recommended adult care

Why does CHD require lifelong, specialized care?

Childhood treatments

  • May be outgrown
  • Can lose effectiveness
  • Can trigger issues later as an adult

CHD not treated as a child

  • May not have been severe enough to treat but may worsen later in life
  • May never have been diagnosed

CHD symptoms may appear later in life

  • Sudden loss of consciousness
  • Abnormal heart rhythms
  • Shortness of breath

A specialist for adults with CHD can advise on unique care needs.

Heart-related care

  • Heart rhythm
  • Heart failure
  • Medical intervention, surgery or transplant

Other considerations

  • Symptoms
  • Pregnancy
  • Genetics
  • Careers
  • Mental health
  • Liver/ Kidney disease