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Deciding to have a genetic test is a personal decision. It is important to respect your family member's choice, even if it is not the same as yours. Some questions your family member may want to consider when deciding whether or not to have testing include:

  • How will I use the information?
  • How will I react if my test finds that I am a carrier?
  • How will I feel if I am not a carrier?
  • How will my family react if some of us are carriers and some are not?
  • Is now the right time to do the testing?
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