Spina Bifida

Frequently Asked Questions

Is there a cure for spina bifida?
No, there is no cure. However, treatment is available. In addition, the possibility of spina bifida can be decreased when the mother takes a prenatal vitamin. Because the spinal cord develops so early in pregnancy, vitamins should be started before conception. All women of childbearing age should take a daily multivitamin that includes folate.

What is the treatment for spina bifida?
The first step in the treatment of a child with an open neural tube defect or myelomeningocele is surgery to close the defect in the back. The goal of this operation is not to restore neurological deficit, but to prevent further trauma to the exposed spinal cord. If the child has associated hydrocephalus (water on the brain), treatment to eliminate the hydrocephalus is necessary. In addition, ongoing multidisciplinary care is needed to address any future treatment options that may be needed.

Will a child with spina bifida be able to walk?
Children with spina bifida have varying degrees of paralysis of the lower extremities. Some children can walk unassisted. Others can walk with support such as braces or crutches. Still other children are unable to walk. The ability to walk depends on the level of the spinal cord defect. The multidisciplinary team will discuss this with parents and treatments will be instituted to help the child reach maximal potential.

Can spina bifida be detected before birth?
Yes, in most cases a blood test can determine the level of a protein called alpha-fetoprotein. This protein is elevated in approximately 75 percent to 80 percent of women with a fetus with spina bifida. In addition, an ultrasound of the fetus often can detect abnormality of the spinal cord and hydrocephalus. When a myelomeningocele is detected before birth, the family can meet with the neurosurgeon and other spina bifida team members for information and planning.