Pediatric patient stories

  1. "We plan to continue to use the Mayo Clinic, no matter where in the country we live"

    Every physician Anne Stohrer and her son turned to for treatment of his chronic knee and hip pain came-up with a non-diagnosis. Many frustrating years passed while they fought to find a care plan that would relieve his pain and allow him to be the young, active boy he wanted to be. As the years [...]

  2. Shelby Birch

    Family gives up mashed potatoes in respect of toddler's restrictive diet

    The Birch family of Elizabeth, Minn., doesn't eat mashed potatoes anymore. The family's youngest member, Shelby, age 2, is on the ketogenic diet to control seizures from epilepsy. The high-fat, low-protein, no-carbohydrate diet prohibits potatoes. Before Shelby started the diet, her very favorite food was mashed potatoes. "When she had to take anti-seizure medication, we [...]

  3. Emily Crawford

    Brain tumor surgery stops seizures

    When 9-year-old Emily Crawford began having seizures, the symptoms were subtle. "At times, Emily just wouldn't respond to anything," says her mother, Rebecca Crawford. "She would look around, fidget with her hair or buttons, or move her foot, but she didn't seem to know what was going on. She wasn't in the present." Over the [...]

  4. A Second Opinion for Trevor

    Shortly after he was born in early 2008, Trevor King was diagnosed with Long QT Syndrome, a condition that could cause sudden cardiac death. He may be the youngest patient ever to get a pacemaker-defibrillator, a device that sends an electric shock to the heart when it detects a potentially life-threatening heart rhythm. But in [...]

  5. Beads of Courage

    We are proud to say that the Pediatric Oncology Nurses/Nurse Practitioners implemented the Beads of Courage Program at Mayo Clinic using money received from the Kids Cup in 2008.  The program is a resilience-based intervention designed to support and strengthen children and families dealing with a serious illness.  The children tell their story of treatment [...]

  6. Ella Schultz

    Ella Schultz: Thriving with Family and Medical Support

    Even before 6-year-old Ella Schultz was born, she was already a miracle and had beaten many odds. Because Ella's mother, Patty, was 42 years-old when she was considering becoming a parent, and her father, Ernie, had survived cancer, neither were sure they would be able to conceive a child. Fortunately, they were able to become [...]

  7. Josh Johnson

    Teen back in action after neurosurgery for spinal cord tumor

    In early 2009, Josh Johnson's parents thought their 14-year-old's back was likely sore from a few falls he'd taken while snowboarding competitively. They live in Afton, Minn. and Josh spends his winters snowboarding and his summers wakeboarding. However, after a couple months of complaining, they knew it must be something more. Josh couldn't even bend over [...]

  8. Dr. Michael Ackerman and Stefani

    A Prom Promise Kept

    As an 8-year-old girl from Michigan was headed into surgery for a heart transplant, she asked Mike Ackerman -- a pediatric cardiology fellow at Mayo who was part of her care team -- if she was going to live. Dr. Ackerman said, "Of course you're going to live, and I'm going to dance with you [...]

  9. Long day's journey into light

    From my office window where I work in Education at Mayo Clinic, I see the massive Gonda Building.  And from nine in the morning until noon, the sunlight reflects off the windows, revealing the scene inside, and I watch it unfold before me. Patients sit and doze in the sunlight, people walk to their appointments, [...]

  10. Diagnosing Nick's Mysterious Illness

    Melissa Shultz, a freelance writer living in Plano, Texas, wrote an article for Newsweek online about her son Nick's mysterious illness and his diagnosis and treatment at Mayo Clinic. Fatigue set in a day after Nick's dizziness started. Swollen glands followed close behind. Our general practitioner ordered blood work, including studies for mononucleosis and Lyme [...]

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