Below are some helpful Internet resources on this topic. Mayo Clinic does not own or control any of these sites and is not responsible for their content. Inclusion of these sites does not imply endorsement by Mayo Clinic.
www.ncbi.nlm.nih.gov
National Center for Biotechnology Information, National Institutes of Health
www.umdf.org
United Mitochondrial Disease Foundation
www.rarediseases.org
National Organization for Rare Disorders
www.ulf.org
United Leukodystrophy Foundation
www.ntsad.org
National Tay-Sachs & Allied Diseases Association, Inc.
www.oaanews.org
Organic Acidemia Association
www.rettsyndrome.org
International Rett Syndrome Assn.
www.bdsra.org
Batten Disease Support & Research Association