The most important information to look for is the one-year and three-year survival rates of each individual program. However, it is also important to make sure that the patient follow-up is adequate so that the results are representative of the program. A good center should have a one-year survival rate of greater than 90 percent (national average 86.6 percent), a three-year survival rate of greater than 85 percent (national average 77.4 percent), and a patient follow-up rate of greater than 90 percent. Data can be found at the following independent organization Web sites:
For information about Mayo Clinic's liver transplant survival rates, see Volumes and Statistics.
It is helpful to know how long the program has been in existence and how long it has been performing liver transplants. Larger programs with a sustained history of excellence are likely to be more stable over time. It is also helpful to know if a program has been continuously active for a number of years, since some programs will have a short period of activity, followed by a lull as conditions change and personnel move on to other institutions.
Some pertinent information to find out would be:
Centers that contribute to new ideas and research in the field of liver disease and liver transplantation generally have personnel who are in touch with the latest therapies and techniques. Patients can benefit by seeking the most up-to-date treatment options.
Ask to see if new and evolving therapies are offered at the center, especially ones that may pertain to your particular disease. Some centers participate in protocols funded by the National Institutes of Health (NIH) which, in general, must meet rigorous criteria in order to be approved. Others participate in pharmaceutical company-sponsored research protocols which are designed to test new medications and treatments.
Patients will have to decide if participating in a trial or protocol is for them. Some patients are comfortable doing so and others are not. However, if a program participates in these types of studies, it generally means they are active in research and are interested in keeping up with the best and newest techniques available for care.
Programs will have different areas of special expertise. It is very helpful to meet the people who have a special interest in your disease, so you can get an idea of what experience they may have and what they can offer that another center cannot.
Credentialing has been established for all medical personnel, including:
Determining the experience of hepatologists and transplant surgeons is best accomplished by asking them how long they have worked in the field and how many transplants they have done. Experienced hepatologists have usually worked at least three years after their fellowship training, while experienced transplant surgeons have done at least 100 liver transplants after completing their fellowship training.