Mayo Clinic is active in a number of areas of research on this disease, under the aegis of the Hyperoxaluria Center in Rochester. The center compiles statistics on patient outcomes and houses an international data registry.
International Registry for Hereditary Calcium Stone Diseases
http://mayoresearch.mayo.edu/mayo/research/nephrology/registry.cfm
See a list of publications by Mayo doctors on hyperoxaluria and oxalosis on PubMed, a service of the National Library of Medicine.
Research descriptions of individual investigators on www.mayo.edu: