Treatment of Ehlers-Danlos syndrome focuses on managing your symptoms and preventing further complications.
- Physical therapy. Some people with Ehlers-Danlos syndrome benefit from strengthening their muscles. A physical or occupational therapist can provide exercises to strengthen your muscles without causing injury.
- Drugs. Treatment may include pain medication for joints and muscles, including nonsteroidal anti-inflammatory drugs, such as ibuprofen (Advil, Motrin, others) or naproxen (Aleve), or topical anesthetics.
- Surgery. In rare cases, doctors may recommend surgery to repair blood vessels or damaged joints. For most people with vascular Ehlers-Danlos syndrome, treatment involves controlling high blood pressure, medications and exercise restrictions. Because blood vessels and other hollow organs are fragile and subject to rupturing in people with vascular Ehlers-Danlos syndrome, doctors recommend surgery only for people with who are in danger of life-threatening bleeding.
- Follow-up. Most people with Ehlers-Danlos syndrome will require regular monitoring. For people who have vascular Ehlers-Danlos syndrome but no symptoms, doctors may recommend an annual physical examination and carotid and abdominal ultrasound. People with known artery problems may receive either computerized tomography angiography or magnetic resonance angiography every six to 12 months.
- Genetic consultation and counseling. People with Ehlers-Danlos syndrome have a 50 percent chance of passing the condition on to each of their children, so a genetic consultation can provide useful information.