Coping and support

By Mayo Clinic Staff

With treatment, you're likely to recover from Wegener's granulomatosis. However, you may feel stress about the possibility of recurrence or about any damage the disease may cause, such as to your kidneys. Here are some suggestions for coping with the disease:

  • Educate yourself about Wegener's granulomatosis. The more you know, the better prepared you may be to deal with complications, the side effects of your medications or possible recurrences. Besides talking to your doctor, you may want to talk to a counselor or medical social worker. Or you may find it helpful to talk to other people with Wegener's granulomatosis.
  • Maintain a strong support system. Family and friends can help you as you go through the process of diagnosis and treatment. You also may find the concern and understanding of other people with Wegener's granulomatosis informative and comforting. Your doctor or a medical social worker may be able to put you in touch with a support group.
Dec. 19, 2012