You may be referred to a doctor who specializes in disorders of the brain and nervous system (neurologist).
What you can do
- Write down your symptoms, including any that may seem unrelated to the reason why you scheduled the appointment.
- Make a list of all your medications, vitamins and supplements.
- Write down your key medical information, including other conditions.
- Write down key personal information, including any recent changes or stressors in your life.
- Write down questions to ask your doctor.
- Ask a relative or friend to accompany you, to help you remember what the doctor says.
Questions to ask your doctor
- What's the most likely cause of my symptoms?
- What kinds of tests do I need?
- How does progressive supranuclear palsy usually progress?
- What treatments are available, and what types of side effects can I expect?
- I have other health conditions. How can I best manage these conditions together?
- Should I restrict my activities?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask other questions during your appointment.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Being ready to answer them may make time to go over points you want to spend more time on. You may be asked:
Apr. 10, 2014
- Have you experienced problems with balance or walking?
- Do you find it difficult to see items below you, such as the plate when you are eating?
- Do you have trouble speaking or swallowing?
- Have your movements felt stiff or shaky?
- Have you experienced any troubling mood changes?
- When did you begin experiencing these symptoms? Have they been continuous or occasional?
- Does anything seem to improve or worsen these symptoms?
- Factor SA. Progressive supranuclear palsy (PSP).http://www.uptodate.com/home. Accessed Dec. 3, 2013.
- Ferri FF. Ferri's Clinical Advisor 2014: 5 Books in 1. Philadelphia, Pa.: Mosby Elsevier; 2014. https://www.clinicalkey.com. Accessed Dec. 3, 2013.
- Ropper AH, et al. Adams & Victor's Principles of Neurology. 9th ed. New York, N.Y.: The McGraw-Hill Companies; 2009. http://www.accessmedicine.com/resourceTOC.aspx?resourceID=54. Accessed Dec. 3, 2013.
- Boeve BF. Progressive supranuclear palsy. Parkinsonism and Related Disorders. 2012;18S1:S192.
- Josephs KA, et al. Modeling trajectories of regional volume loss in progressive supranuclear palsy. Movement Disorders. 2013;28:1117.
- Fujioka S, et al. Similarities between familial and sporadic autopsy-proven progressive supranuclear palsy. Neurology. 2013;80:2076.
- Progressive supranuclear palsy fact sheet. National Institute of Neurological Disorders and Stroke. http://www.ninds.7.gov/disorders/psp/detail_psp.htm. Accessed Dec. 3, 2013.
- Liscic RM, et al. Differentiation of progressive supranuclear palsy: Clinical, imaging and laboratory tools. Acta Neurologica Scandinavica. 2013;127:362.
- Josephs KA, et al. A clinicopathological study of vascular progressive supranuclear palsy. Archives of Neurology. 2002;59:1597.
- Josephs KA, et al. Apraxia of speech and nonfluent aphasia: A new clinical marker for corticobasal degeneration and progressive supranuclear palsy. Current Opinion in Neurology. 2008;21:688.
- Whitwell JL, et al. Neuroimaging comparison of primary progressive apraxia of speech and progressive supranuclear palsy. European Journal of Neurology. 2013;20:629.
- Whitwell JL, et al. Imaging measures predict progression in progressive supranuclear palsy. Movement Disorders. 2012;87:1801.
- Botha H, et al. The pimple sign of progressive supranuclear palsy. Parkinsonism and Related Disorders. In press. Accessed Dec. 3, 2013.
- Coon EA, et al. Primary lateral sclerosis as progressive supranuclear palsy: Diagnosis by diffusion tensor imaging. Movement Disorders. 2012;27:903.
- Josephs KA (expert opinion). Mayo Clinic, Rochester, Minn. Dec. 13, 2013.
- AskMayoExpert. Can rehabilitation help patients with Parkinson's disease and other movement disorders? Rochester, Minn.: Mayo Foundation for Medical Education and Research; 2012.
- A guide for people living with PSP, CBD, and other atypical Parkinsonian disorders. CurePSP. http://www.psp.org/education/. Accessed Dec. 4, 2013.
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