Coping and support

By Mayo Clinic Staff

Losing the ability to communicate is distressing and incredibly frustrating. Friends and family members can make communication easier by:

  • Paying close attention to the affected person
  • Giving feedback about the need for clarification
  • Providing more time for communication
  • Confirming information
  • Keeping statements relatively brief
  • Supplementing speech with gestures

Family members eventually may need to consider long-term care options for the person with primary progressive aphasia. Family members may also need to plan the person's finances and help make legal decisions to prepare for more-serious stages of the condition.

Support groups may be available for you and the person with primary progressive aphasia or related conditions. Ask your social worker or other members of your treatment team about community resources or support groups.

Jan. 16, 2013