Tips to help you take care of your loved one with Prader-Willi syndrome include the following:
April 17, 2014
- Pick up your child carefully. Babies and children with Prader-Willi syndrome have poor muscle tone, which increases their risk of slipping between your hands when you lift them under their armpits.
- Stick to a strict meal plan. Eating a low-calorie diet is essential to keep your child from becoming overweight. Structure meal times and the type of food provided to help develop routines and to help your child understand expectations.
- Take steps to help prevent binge eating. Avoid buying high-calorie snacks. Store food out of your child's reach. Lock pantries, refrigerators and cupboards. Use small dishes for serving meals.
- Ask about supplements for your child's diet. If your child is on a restricted-calorie diet, ask your health care provider if supplemental vitamins or minerals are necessary to ensure balanced nutrition.
- Encourage regular daily activity. Increasing physical activity and exercise can help manage weight and improve physical functioning.
- Set limits. Create a firm schedule and work on behavioral problems. If needed, seek help to address problems.
- Schedule appropriate screening tests. Talk with your health care provider about how often screening is needed for complications of Prader-Willi syndrome, such as diabetes, osteoporosis or an abnormally curved spine (scoliosis).
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- Overview of early intervention. National Dissemination Center for Children with Disabilities. http://nichcy.org/babies/overview. Accessed Dec. 21, 2013.
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- Intellectual disabilities. In: Diagnostic and Statistical Manual of Mental Disorders DSM-5. 5th ed. Arlington, Va.: American Psychiatric Association; 2013. http://www.psychiatryonline.com. Accessed Jan. 10, 2014.
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