Having a child with Prader-Willi syndrome and related behavioral problems is challenging and can take a lot of patience. Managing eating problems, behaviors and medical issues can impact the whole family.
Some people find it helpful to talk with others who share similar experiences. Ask your health care provider about family support groups in your area. Organizations such as the Prader-Willi Syndrome Association provide resources, support groups and educational materials. You can reach the Prader-Willi Syndrome Association at 800-926-4797.
Apr. 17, 2014
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