If you have any signs or symptoms that worry you, make an appointment with your doctor.
If you're diagnosed with multiple myeloma, you'll likely be referred to a doctor who specializes in treating blood and bone marrow disorders (hematologist) or a doctor who specializes in treating cancer (oncologist).
Because appointments can be brief and because there's often a lot of ground to cover, it's a good idea to be well-prepared. Here's some information to help you get ready and know what to expect from your doctor.
What you can do
- Note symptoms you're experiencing. If you have had signs and symptoms of illness or are just not feeling well, write down those details before your appointment. Your doctor will also want to know when you first noticed these symptoms and whether they've changed over time.
- List other medical conditions. Your doctor will be especially interested to know if you've been diagnosed with any other plasma disorders, such as monoclonal gammopathy of undetermined significance (MGUS).
- Make a list of your medications. Include any prescription or over-the-counter medications you're taking, as well as all vitamins, supplements and herbal remedies.
- Take a family member or friend along. Sometimes it can be difficult to remember all the information provided during an appointment. Someone who accompanies you may remember something that you missed or forgot.
- Write down questions to ask your doctor.
Questions to ask your doctor at your initial appointment include:
- What may be causing my symptoms or condition?
- Are there any other possible causes?
- What kinds of tests do I need?
- What do you recommend for next steps in determining my diagnosis and treatment?
- Are there any restrictions that I need to follow in the meantime?
Questions to consider if your doctor refers you to a specialist include:
- Do I have multiple myeloma?
- What stage of myeloma do I have?
- Does my myeloma have any high-risk features?
- What are the goals of treatment in my case?
- What treatment do you recommend?
- I have these other health problems. How can I best treat them together with multiple myeloma?
- What are the possible side effects of treatment?
- If the first treatment isn't successful, what will we try next?
- Am I a candidate for bone marrow transplantation?
- Do I need a medicine to strengthen my bones?
- What is the outlook for my condition?
In addition to the questions that you've prepared to ask your doctor, don't hesitate to ask questions during your appointment at any time that you don't understand something.
What to expect from your doctor
Your doctor is likely to ask you a number of questions. Thinking about your answers ahead of time can help you make the most of your appointment. A doctor who sees you for possible multiple myeloma may ask:
- What are your symptoms, if any?
- When did you first begin experiencing symptoms?
- How have your symptoms changed over time?
- Do your symptoms include bone pain? Where?
- Do your symptoms include nausea, lost appetite or weight loss?
- Do your symptoms include weakness or fatigue?
- Have you had repeated infections, such as pneumonia, sinusitis, bladder or kidney infections, skin infections, or shingles?
- Have you noticed any changes in your bowel habits?
- Have you been more thirsty or urinated more than usual?
- What else concerns you?
- Do you have any family history of plasma disorders such as MGUS?
- Have you been diagnosed or treated for any other medical conditions?
- Do you have a history of blood clots?
- What medications are you taking?