When you learn your child has microcephaly, your emotions might include anger, fear, worry, sorrow and guilt. You may not know what to expect, and you may worry about your child's future. The best antidote for fear and worry is information and support.
Jan. 25, 2016
Find a team of trusted professionals. You'll need to make important decisions about your child's education and treatment. Create a team of doctors, teachers and therapists and other professionals who can help you evaluate the resources in your area and explain state and federal programs for children with disabilities.
Medical specialties your child might require include pediatrics and developmental pediatrics, infectious diseases, neurology, ophthalmology, genetics and psychology.
- Seek other families who are dealing with the same issues. Your community might have support groups for parents of children with developmental disabilities. You might also find online support groups.
- Hay WW, et al. Neurological assessment and neurodiagnostics. In: Current Diagnosis & Treatment: Pediatrics. 22nd ed. New York, N.Y.: McGraw-Hill Education; 2014. http://www.accessmedicine.com. Accessed Feb. 18, 2015.
- Boom JA. Microcephaly in infants: Etiology and evaluation. http://www.uptodate.com/home. Accessed Feb. 18, 2015.
- NINDS microcephaly information page. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/disorders/microcephaly/microcephaly.htm. Accessed Feb. 18, 2015.
- Hoecker JL (expert opinion). Mayo Clinic, Rochester, Minn. Feb. 20, 2015.