Beyond complications for your health, a genetic disorder such as Lynch syndrome may be cause for other concerns. A genetic counselor is trained to help you navigate the areas of your life that may be affected by your diagnosis, such as:
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- Your privacy. The results of your genetic test will be listed in your medical record, which may be accessed by insurance companies and employers. You may worry that being diagnosed with Lynch syndrome will make it difficult to change jobs or health insurance providers in the future. Federal laws protect Americans from discrimination. A genetic counselor can explain legal protections.
- Your children. If you have Lynch syndrome, your children have a risk of inheriting your genetic mutations. If one parent carries a genetic mutation for Lynch syndrome, each child has a 50 percent chance of inheriting that mutation.
- Your extended family. A Lynch syndrome diagnosis has implications for your entire family. You may worry about the best way to tell family members that you're having genetic testing. A genetic counselor can guide you through this process.
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