Coping and support

By Mayo Clinic Staff

Having a child with Krabbe disease may be one of the most difficult things you'll ever have to cope with, and some people find it easier if they don't do it alone. The United Leukodystrophy Foundation offers online support and connections to other families dealing with Krabbe disease. The organization's number is 800-728-5483 or you can visit the website at www.ulf.org.

Jun. 11, 2011