Coping and support

By Mayo Clinic Staff

With treatment and support, men with Klinefelter syndrome can expect to lead a normal life. The condition may cause minor symptoms that are hardly noticeable. Educational and social support can make a positive difference.

Boys with Klinefelter syndrome

To help your son cope with Klinefelter syndrome and promote healthy mental, physical, emotional and social development:

  • Monitor your son's development carefully and seek help for problems you notice, such as trouble with speech or language.
  • Encourage participation in sports and physical activities that will help build muscle strength and motor skills.
  • Encourage your son to be independent. Be supportive but not overly protective, and provide a home environment with lots of positive feedback and encouragement.
  • Cooperate closely with your son's school. Teachers, school counselors and administrators who understand your son's needs can make a big difference.
  • Learn what support is available, such as special education services.
  • Connect with other parents. Klinefelter syndrome is a common condition, and you — and your son — aren't alone. A number of Internet resources and support groups may help answer your questions and ease concerns.

Men with Klinefelter syndrome

Men with Klinefelter syndrome can benefit from several self-care measures:

  • Work closely with your doctor. Appropriate treatment can help you maintain your physical and mental health and prevent problems later in life, such as osteoporosis.
  • Investigate your options for planning a family. You and your partner may want to talk to a doctor or other health professional about your options.
  • Talk with others who have the condition. There are a number of resources that provide information about Klinefelter syndrome and perspectives of other men and their partners who cope with the condition. Many men also find it helpful to join a support group.
June 25, 2013