Preparing for your appointment

Most people with fibrous dysplasia don't have symptoms and are diagnosed when an X-ray taken for another reason reveals signs of fibrous dysplasia.

However, in some cases you or your child may experience pain or other symptoms that lead you to schedule an appointment with your family doctor or your child's pediatrician. In some cases, you may be referred to a doctor who specializes in treating bone and muscle injuries or disorders (orthopedic surgeon).

What you can do

Before your appointment, you might want to compose a list of answers to the following questions and be ready to discuss them with your doctor:

  • When did symptoms begin?
  • How severe are the symptoms?
  • Have symptoms been continuous or occasional?
  • Does any specific activity make the symptoms worse?
  • Does anything relieve symptoms?
  • Does pain wake you or your child at night?
  • Is the pain or deformity getting better, staying the same or getting worse?
  • What medications or supplements do you or your child take regularly?