Preparing for your appointment

Most people with fibrous dysplasia don't have symptoms and are diagnosed when an X-ray taken for another reason reveals signs of fibrous dysplasia.

However, in some cases you or your child may experience pain or other symptoms that lead you to schedule an appointment with your family doctor or your child's pediatrician. In some cases, you may be referred to a doctor who specializes in treating bone and muscle injuries or disorders (orthopedic surgeon).

What you can do

Before your appointment, you might want to compose a list of answers to the following questions and be ready to discuss them with your doctor:

  • When did symptoms begin?
  • How severe are the symptoms?
  • Have symptoms been continuous or occasional?
  • Does any specific activity make the symptoms worse?
  • Does anything relieve symptoms?
  • Does pain wake you or your child at night?
  • Is the pain or deformity getting better, staying the same or getting worse?
  • What medications or supplements do you or your child take regularly?
July 14, 2017
References
  1. Fibrous dysplasia. American Academy of Orthopaedic Surgeons. http://orthoinfo.aaos.org/topic.cfm?topic=A00083. Accessed May 13, 2017.
  2. Hakim DN, et al. Benign tumours of the bone: A review. Journal of Bone Oncology. 2015;4:37.
  3. Czerniak B. Fibrous dysplasia and related lesions. In: Dorfman and Czerniak's Bone Tumors. Philadelpia, Pa.: Saunders Elsevier; 2016. https://www.clinicalkey.com. Accessed May 12, 2017.
  4. Tis JE. Benign bone tumors in children and adolescents. https://www.uptodate.com/home. Accessed May 12, 2017.
  5. Fibrous dysplasia overview. National Institute of Arthritis and Musculoskeletal and Skin Diseases. https://www.niams.nih.gov/Health_Info/Bone/Additional_Bone_Topics/fibrous_dysplasia.asp. Accesssed May 12, 2017.